Hello,
My name is Tammy and I am the mother of a four month old baby girl
named Katherine. Katherine was diagnosed with Hydroephalus when I was
34 weeks pregnant with her - it was found during a routine ob exam.
Although it was devastating to find out, I feel extremely fortunate to
have found out so early. Kate was shunted at two days old and has been
doing wonderful - so far, she shows no developmental delays. Her head
was 41 and a half centimeters at birth (at 39 weeks gestation) and is
now 42 centimeters at four months old. Her skull bones are overlapping
and it's possible she may need a cranial expansion surgery someday -
has anyone here had that surgery? I don't like to think about what it
may entail and I pray she won't need the surgery, but, as everyone
here knows...with Hydrocephalus you can make absolutely no predictions
about the future. There are no answers and no cure - that is the
hardest part as her mom. I just want to take it all away. Thanks for
listening. I do not know anyone else with Hydrocephalus so I am
looking for any advice and information that is available, especially
from people living with the condition. I know this is Katherine's
battle and I want to support her the best I can.
Thanks!
Tammy
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