I also have the same type of shunt as your sone. I had mine plased as part of a revision in 2004. Mine right now is set at the hightest setting and I am still having headaches and my NS says there is nothing else that he can do for me.
I really think that the Codeman shunt might help me because it has more settings to the valve itself. I got hydro as a resulyt of menengitis at six months of age. Yes I am considered as having a disibility because of my vision problems. I use a guide dog.
Hi, my name is Nelda and I have a son who was born 26 weeks premature, has hydrocephalus due to a grade IV interventricaular hemorrhage during birth. He has a VP shunt placed when he was 10 mos. old. He's now 4 yrs.old. He had 2 shunt malfuncyions once last Dec 05 and the second one last Jan 06. The only symptom he had was he cannot walk. At first we thought it's because of his weakness in his body (He was dx as hemiplegic and wears a brace on his right foot.) The 2nd time it happened (after a year) we know where to bring him, to the ER. What the Neurosurgeon did was to adjust the strata valve with a magnet and it's now in the lowest. I'm kinda concern because it happens every year and the NS told me that if it happens again, they might change the valve which means surgery. I'm scared 'coz the first time they put the VP shunt, he almost died. I'm so glad I found this site because it helps me to vent my concerns and also it educates me about what hydrocephalus means. I also want to know it having a VP shunt due to hydrocephalus or having hydrocephalus itself considers a person as disable. Now he is considered disable because of his prematurity and having developmental delays. I don't know if it is also because of having a shunt. I know some of you doesn't have dev. delays but did they consider you as having a disability of some sort? (I don't mean to offend anybody). Thanks and hope to get some anwers.
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Hi, my name is Nelda and I have a son who was born 26 weeks premature, has hydrocephalus due to a grade IV interventricaular hemorrhage during birth. He has a...
hi, im a mother of a hydro child. he's now 4yrs old. he was shunted since he was 2 months old. he is a smart kid like a normal one.he's only problem is that he...
Hi Beth, my son walks at 29 months and I think it comes from the brain coz the brain is the one that tells us what our body should do. He also is in therapy...
Hi Nelda, My son was also born with hydro. they shunted him before he was 24 hrs. old, he is now 22 yrs.old. My son James has been turned down for the state...
Hi Nelda, I also have the same type of shunt as your sone. I had mine plased as part of a revision in 2004. Mine right now is set at the hightest setting and I...
Hi Laura, do you know what kind of shunt do you have. You said you have the same as my son's. He's now on the lowest setting which is .5 ( before that, it was...
Hi Nelda, My shunt is a Medtronic Strata Valve. Laura ... From: valdeznelda To: hydrocephalus@yahoogroups.com Sent: Wednesday, August 23, 2006 8:10 PM Subject:...
Hello, I do know someone from another message board with hydro and she doesn't have a shunt. She has Aqueductal Stenosis but she doesn't have a third Vent...
Hello, I am named Aneta from Bulgaria. The son washed passes in 4 years,, but I made much him uses and gymnastics and massages. Without them there weren't...
Daisy, the only way I know of is if you have a procedure called an ETV. Melissa __________________________________________________ Do You Yahoo!? Tired of...
Actually there is something called "external" Hydrocephalus and you don't usually need a shunt for that. My friend's son had it. He had a big head and all but...
I have never heard of external hydro. I have heard of Arrested Hyrocephalus though. __________________________________________________ Do You Yahoo!? Tired of...
Hi Heather, Welcome to the group! I am Ripplegirl99 I am 26 I got hydro at six months of age and was not shunted until I was ten. Due to that I have a very...
Hi RippleGirl, Yes I did just join the VIPHyrdrocephalus group! I have had hydro since I was born but I didn't get diagnosed and shunted until I was about a...
Hi Ripple Girl Like you, I have a large head and can't wear baseball hats or many other hats for that matter. I also have not rode a bike in years because I am...
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