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Hi i am actually the one with hydro diagnosed at 3 months due to dandy walker. I am now 36 i'm still learning about this as i go but i'm here if you ever need to talk.
Julie
S&M <ugly@...> wrote:
S&M <ugly@...> wrote:
----- Original Message -----
From: "rospancho" <rospancho@...>
To: <hydrocephalus@yahoogroups.com>
Sent: Monday, March 20, 2006 06:10
Subject: [hydrocephalus] twinkle..
> my 5 year old daughther "twinkle" was born with a dandy walker cyst
> and 3 months after she was diagnosed with hydrocephalus.. i want to
> meet parents with similar situation as mine... thanks goodluck to all
> of us
I don't know of any personally but I do wish you and your daughter all the
best.
I'm Sean, I'm 38 and I had my first known shunt operation when I was 4
months old.
My last one was in 2002. My daughter is also 5 and almost totally healthy -
bad eyesight runs in the family so she has been wearing eyeglasses since she
was 10 months old. However, I do not have DW so it's not quite the same.
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