Sean you are lucky I wish I could wait 16 years between Neuro appointments .... neuros and I don't see eye to eye but hey they don't put up with the hydro 24/7!!
----- Original Message ----- From: "Larry Misaras" <budd624@...> To: <hydrocephalus@yahoogroups.com> Sent: Tuesday, January 10, 2006 01:44 Subject: Re: [hydrocephalus] hey
> Hi Jill, > > My name is Larry and I was diagnosed with > hydrocephalus due to Dandy-Walker Syndrome at 1 month > old. I have had 25 surgeries the last one was on > March 8, 2000! I am 33 years old and I married my > high school sweetheart almost 3 years ago. I used to > live in the midwest and when I got married I moved to > the west coast. Ever since I moved out west I have > not had any symptoms of hydro!
Maybe it's the air. Seriously though, how does your better half cope with a husband who has hydrocephalus? Sometimes my wife finds it exceedingly difficult, although I told her that with some of the challenges I face, she has no choice but to be paitent with me since they are harder for me than they are for her (eg. remembering things, or having to take time to formulate my thoughts). She's gotten better at it, but she still has her moments. It was even worse when I had to go for a shunt revision in 2002. She knew it may have to happen someday - I warned her of it, symptoms, outlined what may happen, no matter that it had been 16 years since my last malfunction (a milestone for me). She survived my surgery <g> and will probably be better prepared if there ever comes a next time (which, based on my mathematical calculations according to the exponentially changing intervals between revisions shouldn't be until about the year 2047. Yeah right, I should only be so lucky.
i thought i was a FREAK i didnt realize that so many people actually survived this kind of situation. would like to hear from my fellow peeps. If its an...
What type of Hydro do you have? I have Dandy Walker Syndrome with a programmable shunt implanted in 2003. My third one. Back in 2002 my shunt got infected...
that is weird that the change of living has seemed to help your matters. that is pretty cool. Larry Misaras <budd624@...> wrote: Hi Jill, My name is...
Larry- I am glad to hear that you are doing so well. When you say 25 surgeries, are you including shunt revisions as well? I know at last count I had over ...
Longtime lurker, first-time poster.... I'm 30 years old and still living with congenital hydrocephalus after having been shunted since I was six months old. I...
Sean, The situation is different for everyone, obviously, but, after a long struggle (the depression started after a major shunt revision that I had 18 years...
... From: Sweetrse1@... To: hydrocephalus@yahoogroups.com Sent: Tuesday, January 10, 2006 10:49 Subject: Re: [hydrocephalus] hey Larry- I am glad to hear...
Sean you are lucky I wish I could wait 16 years between Neuro appointments .... neuros and I don't see eye to eye but hey they don't put up with the hydro...
Im 27 living with hydro. was diagnosed at 21...... hamptonman12002 <hamptonman12002@...> wrote: i thought i was a FREAK i didnt realize that so many...
you don't hear of many adults diagnosed with hydro however my husband was at the age of thirty and he is thirty two. we (doctors) and i think his had to do...
It's more common than you might think, Dasy...Sometimes it it believed that the person has had hydro since birth, but the body compensated for it until a...
From my understanding Arrested Hydro is when Hydro starts to form, but for some reason stops. A friend of mine, her son has arrested hyrdo. For some reason he ...
Your are correct Richard, I had hydro since birth but had no problems until I was 25 and then I had lots of fatique, depression, and disequilibrium. My...
Larry- Did you have peripheral vision loss? How bad was your sight before the surgery? I have peripheral vision loss in my left eye, and my sight is pretty...
... before the ... sight is ... You didn't ... surgery ... I have 20/40 vision and when my shunt failed in 1994 I lost partial peripherial vision on my left...
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