----- Original Message -----
From: "Larry Misaras" <budd624@...>
To: <hydrocephalus@yahoogroups.com>
Sent: Tuesday, January 10, 2006 01:44
Subject: Re: [hydrocephalus] hey


> Hi Jill,
>
> My name is Larry and I was diagnosed with
> hydrocephalus due to Dandy-Walker Syndrome at 1 month
> old. I have had 25 surgeries the last one was on
> March 8, 2000! I am 33 years old and I married my
> high school sweetheart almost 3 years ago. I used to
> live in the midwest and when I got married I moved to
> the west coast. Ever since I moved out west I have
> not had any symptoms of hydro!

Maybe it's the air. Seriously though, how does your better half cope with a
husband who has hydrocephalus?
Sometimes my wife finds it exceedingly difficult, although I told her that
with some of the challenges I face, she has no choice but to be paitent with
me since they are harder for me than they are for her (eg. remembering
things, or having to take time to formulate my thoughts).
She's gotten better at it, but she still has her moments. It was even worse
when I had to go for a shunt revision in 2002. She knew it may have to
happen someday - I warned her of it, symptoms, outlined what may happen, no
matter that it had been 16 years since my last malfunction (a milestone for
me). She survived my surgery <g> and will probably be better prepared if
there ever comes a next time (which, based on my mathematical calculations
according to the exponentially changing intervals between revisions
shouldn't be until about the year 2047. Yeah right, I should only be so
lucky.

-Sean