thats interesting.i was also born with hydrocephalus but it wasnt diagonsed until i was about a year old...some damage was already done but i could of ended up much worse off...i had the shunt put in when i ws 15 months and my parents could see some major changes when i was still in the hospital...i also have not had any shunt replacements surgerys since...the doctor told my parents to expect the shunt to clog every 3 to 4 years...meaning i'll need to get it replaced....but it's been almost 18 years!!!

gzus_saves2000 <gzus_saves2000@...> wrote:

Hello everyone. I'm am new to the group and wanted to introduce myself
an situation. My name is Kelly, I have a son who is 11 years old now. I
was 5 mths pregnant when I found out that he had hydrocephalus. When
later found out that it is caused from a rare chromosome disorder
called RING 6. He had the shunt put in when he was 3 weeks old, and has
had the same one ever since! God has truly blessed him and our family
with good doctors. We recently had a bit of a scare, but found out
everything as ok. In my sons case his 3d to 4th ventricle was not
formed. Anyway I guess thats enough for now :) I hope to get to know
you all well!  God Bless

KellyH