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Reply | Forward Message #1017 of 2028 |
Hello everyone. I'm am new to the group and wanted to introduce myself
an situation. My name is Kelly, I have a son who is 11 years old now. I
was 5 mths pregnant when I found out that he had hydrocephalus. When
later found out that it is caused from a rare chromosome disorder
called RING 6. He had the shunt put in when he was 3 weeks old, and has
had the same one ever since! God has truly blessed him and our family
with good doctors. We recently had a bit of a scare, but found out
everything as ok. In my sons case his 3d to 4th ventricle was not
formed. Anyway I guess thats enough for now :) I hope to get to know
you all well! God Bless

KellyH







Mon Jul 11, 2005 3:32 pm

gzus_saves2000
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Message #1017 of 2028 |
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Hello everyone. I'm am new to the group and wanted to introduce myself an situation. My name is Kelly, I have a son who is 11 years old now. I was 5 mths...
gzus_saves2000
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Jul 11, 2005
3:57 pm

thats interesting.i was also born with hydrocephalus but it wasnt diagonsed until i was about a year old...some damage was already done but i could of ended up...
Tim L
vikingfrogboi
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Jul 11, 2005
4:14 pm

wow you 2 are really lucky my daughter was shunted at 9 months and she has had 3 revisions and the last one was pretty scray cause she did not present the...
LiseAnne Gaudet
tizanne_2
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Jul 11, 2005
11:26 pm

....and their is something weird about this...all the well paid doctors could not figure out what was wrong...and then a volunteer nurse figured out i had...
Tim L
vikingfrogboi
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Jul 11, 2005
11:39 pm

i would have to agree what you have to say tim cause this same thing happend to my husband. he had been complaing for months about headaches and feeling dizzy...
dasy fahnestock
number_9child
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Jul 12, 2005
3:02 am

nurses listen a lot more to the signs then the doctors do, i learnt that one the hard way LA ... From: Tim L To: hydrocephalus@yahoogroups.com Sent: Monday,...
LiseAnne Gaudet
tizanne_2
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Jul 11, 2005
11:48 pm

hi fellow hydro friends My hydrocephalus wasn't discovered till I was 34 so I had been living with this and not knowing why I was having problem,why the...
Kathy & Mark Robson
kathyangelma...
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Jul 13, 2005
1:57 pm

hey you kathy and mark how can you just ignore your family. when my husband had his brain surgery he was real upset that his parents from PA didn't come to see...
dasy fahnestock
number_9child
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Jul 13, 2005
11:05 pm

Dasy, The thing is since Mark and I have been together my parent have done their level best to make sure I stay unhappy. the even paid a know criminal to rape...
Kathy & Mark Robson
kathyangelma...
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Jul 14, 2005
3:52 am
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