... just so negative and matter of fact. It gave none of us hope. Made us scared of HD so much that we can't learn to love our life like we should. Denial...
Hello to all new members! I look forward to swapping stories as we proceed into real live HD status. I've been known to be A BIT talkative so don't get...
For those that didn't know the National HD Team Hope web page recently got its final approval from HDSA and is now live and running at http://www.walk4hd.org....
... Miller" <jemiller@...> wrote: "For those that didn't know the National HD Team Hope web page recently got its final approval from HDSA and is now live and ...
I won't be able to make the chat today. I am in pain and have taken medication that's knocking me out. Will get an early night and hope to be fit for...
but there are still people in there at the moment. Thanks to Maryanna, Matt, Phillip, and Ashlee for their attendance today. Love and hugs to all and all your...
Sorry that I havent been on for some time. Ya'll have been on my mind. Work is good. Trying to get a time here where i can get on-line 4 a short period 4...
We miss ya Rick!!! :D Â Tc, Matt. ... From: Rick Durkee <rickydo1056@...> Subject: [Huntingtons Disease Support Club] Re:HD Support Club Chat, 8/6/2008,...
By STEPHANIE NANO (Associated Press Writer) From Associated Press August 08, 2008 8:26 AM EDT NEW YORK - Harvard scientists say they have created stems cells...
See links to both the AP & Reuters news coverage articles. The below are excerpts only and not the full article. Dr. George Daley and his colleagues at the...
Mike Brown wrote about the new HD support group and he said it was okay if I shared a little more information on this group. If you're receiving individual...
Ooops I sent out the old one with a bad email for Mike. The below & attached is correct, sorry about that! Mike Brown wrote about the new HD support group and...
Sorry to abandon the chats recently but I'm still far from well. The bronchitis has left me with a bad cough which has aggravated my hip again so am having to...
howdy i need your help finding a different dr who knows a lot about hd. i have been seeing dr shannon in chicago but last time i saw her she really rubbed me...
Tonia, have you looked for HD knowledgible neurologists at St. Francis Hospital in Peoria? The University of Iowa and their COE is an option also. If it were...
she didnt tell me to see my family dr i came up with that on my own she just told me "no way and how its all in my mind" i will look into the one in st...
H.R. 6259: Huntington's Disease Parity Act of 2008 On-line Petition http://www.petitiononline.com/HR6259/petition.html As of this morning, August 16, 2008,...
Tonia, don't know how far you are from St. Louis but the doctors there are really great and they are a Center of Excellence. I know them from PHAROS project...
thanks so much i will have to look into them too thanks for all your ideas ya all i am not to far from st louis it would be do able if i have to thanks ...
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