I just wanted to say hello to every one. I know one of the members in this group and the situation we are in is a strange one. However, I feel that I need to...
Hello. I have HD self. I run the only HD postive site. Everyday Iblog about HD and how to live with it. I am in home care and blog about it. I have the top...
and am heading for bed. Thanks to Pam, Laurie, Teresa, Ashlee, Rick, Matt, Tom, and Misty for their attendance today, and for all the heartfelt support to...
Below is the link to yesterday's Patient Power broadcast on JHD. I just listened to the interview which lasts 49:47 so pour a cup of coffee to listen! Check...
Hi. I love someone who may have HD. She hasn't been tested but her mother and many others in her family have it. I'd like to find a support group for those...
In 12 short hours I am leaving to go to Pittsburg for the Huntington's convention. On the way back we are hitting DC and Niagra falls. I will post pics when I...
but there are still people in there at present. Thanks to Laurie, Pam, Matt, Rick, Aunty Pam, Lauren, Lynn, and Mary for joining us today. It was lovely to...
howdy there how r u all doing i wanted to share some good news about my little ones i have been fighting to get to see them for along time and now i have been...
but there are still several people in there at present. Thanks to Matt, Teresa, Pam, Rick, Misty, Liz, Laurie, and Sandy for their attendance today. I look...
Finally got home just after 6am on Tuesday morning. We thought we would be back by 10 or so Monday night, but ran quite a bit behind. The hotel that we stayed...
Lynn, did I meet you at the Convention? Misty ... From: Lynn To: Undisclosed-Recipient:; Sent: Thursday, June 12, 2008 11:50 AM Subject: [Huntingtons Disease...
No, I don't think we met, I met so many people, its hard to remember! LOL Lynn "The world is dangerous to live in not because of the people who do evil things,...
but please do go ahead and use the room <http://pub43.bravenet.com/chat/show.php/3651366053> as usual. I look forward to catching up on Monday. Love and hugs...
I am in the chat room if anyone wants to join. Love and hugs, Kelly ... From: Sue To: huntingtonsdiseasesupportclub@yahoogroups.com Sent: Friday, June 13, 2008...
We've left the chat room. Had a little bit of disruption so Pam, Matty and I send our love and hugs and good byes. Got booted before we could end it nicely. ...
and am heading for bed. Thanks to Rich, Pam, Team Hope, Cas, Jen, Laurie, and Liz for their attendance today. Goodnight and God bless, Love and hugs, Sue &...
My best friend of 32 yrs has been showing signs of hd. Her father, 2 brothers, sister, uncle, etc. have all either passed or have been diagnosed, but she...
Hey...I have HD myself. I am in home care now. I was a former Nurse who looked after my Mom. I made the only positive living HD site. I have care giving tips I...
... father, 2 ... moved ... now ... just ... opinion ... can ... a ... I'm ... would ... time ... as I ... brother ... her. ... tell you is just try to be a...
I joined this site and found it somewhat strange that when I tried to click on the *confirm* link, i got a "cannot find the page" message. Illinois Chapter...
... symptoms. After all, you need to get her in control...right? It doesn't really matter if she has HD, because there is nothing you can do about that, if...
Congressman Bob Filner introduced the bill to congress to require the Commissioner of Social Security to revise the medical criteria for evaluating disability...
First off, have you all checked out HDSA's new website? Still the same old address, www.hdsa.org, but a new updated look. And soon, NYA will have its own home...
rather abruptly as I kept getting disconnected! Thanks to Teresa, Matt, Liz, Lauren, Misty, Darlene, and Laurie for their attendance today. Goodnight and God...
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