Hi guys--I have HD and this sounds how I cope in "social" situations. It is difficult for me to speak because I have dystonia in my tongue so my sentences...
Margie, thank you so much for the insight! That makes total sense and puts a lot of pieces of the puzzle together regarding my brother's behavior. You have...
My brother tends to have "regular" days and then "quiet" days. The quiet days are when he keeps to himself and doesn't talk to anyone for the most part. Right...
Dear Marjorie, THANK YOU for your insight!! Your words have been VERY helpful. My mom is in denial about her HD so getting any input from her is impossible....
Tracy, Your brother's HD seems to be around the same stage as my mom. Mom doesn't have the extreme movements like some HD patients do. Her symptoms are: 1....
This my New Years address. We have lots of hope from this year. Lots of treatments. Lots of new possible cures. We should take stock in knowing this. Every...
As for the liquid makeup, I understand what you mean. Why don't you tell her you have tried some of the new mineral makeup like bare minerals that they have...
Holly, THANK YOU for a great idea! (Plus I got Bare Minerals for Christmas but haven't tried them yet. I understand that are really nice.) Cathy ... From:...
and look forward to chatting again on Friday. Thanks to Sandy, Jeanette, Pam, Rich, and Marshell for their attendance today. Wishing everyone all the best for...
I added a new link. It is dedicated to get us stem cell research in the States. There is ways to email and get a hold of US Representatives. We need to do...
I wish I qualified, I could get a 3 month supply of Synthroid $20.00 vs what Medicare is costing! Income To use Rx Outreach, your income needs to be less than...
Dear Friends of Huntington's Disease, I'm e-mailing you to let you know of another fund raiser Susie and I are involved in. It's the Huntington's Disease...
but there are still lots of people in there at the moment. Thanks to Renny, Teresa, Pam, Ashlee, Sandy, Matt, Rich, and Tonia for their attendance today. I...
Renny has informed me that Christy fell backwards down the basement stairs earlier this week and ended up in ER. She's now feeling battered and bruised and...
You're welcome! Sue sandy czuba wrote: Thank You Sue, Sandy Sue sue_twin2@... wrote: This topic came up in the chat yesterday and I couldn't remember the name...
Here is a poem I saw today and so I'd like to share it with you all. Enjoy. It Couldn't Be Done by Edgar Guest, 1941 Somebody said that it couldn't be done, ...
Source: Times-News <http://www.magicvalley.com/articles/2008/01/06/ap-state-id/d8u0km7o0.tx\ t> Grandparents face challenges when they adopt grandchildren...
just testing to see if my emails are going through :) -- <i>Success is achieved and maintained by those who try and keep trying with a Positive Mental...
I won't be at chat today as I need an early night in preparation for my sister-in-law's funeral tomorrow, nor on Wednesday when I'm taking my mother to a long...
... all. Enjoy. ... I just found this poem...Let me know what you think.. HANG IT ON THE CROSS If you have a secret sorrow, a burden or loss, An aching need...
I have poetry I have got published in the Huntington's Horzen in central Alberta. They are positive poems...One I wrote the day I got my results... I have them...
There are so many great video's on the Internet on HD that I tried finding as many as I could and linked them all to a new website: Huntington's Disease Video...
One of the HD Video Theater links I shared yesterday was this excellent resource video: The Gift of Caring http://www.youtube.com/watch?v=tUPs-Xr5nSw Time:...
Many people have told me that they didn't receive the most recent copy of the HDSA Marker magazine in the mail. Well HDSA now has the electronic version...
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