This could be HUGE! My family is raising money to send a California cousin that was in on the trial. He had Night and Day differences when using the drug....
I pray that this gets passed. This drug could be so helpful for those that are really suffering with the symptoms. It sounds as if that we have finally had a...
No they don't at all. Just the memory lapse and loss of memories. Huntington¢s is genetic and Alzheimer¢s is not. If more people are showing the symptoms in...
As most of you know the FDA will have a hearing for Tetrabenazine [TBZ] on December 6, 2007. This hearing will be a Open Public Hearing which provides...
Hi, my name is Natalie and this is the first time I'm getting a chance to post anything. My father and at least two of his siblings died from HD. I am 38...
as I'm exhausted after attending Rikki's funeral which was a wonderful celebration of a beautiful young woman's life. It was an honour to be able to attend and...
I think it's about time t.v. shows are mentioning H.D. so people are aware that it is real. It was also mentioned on a program called Providence about a week...
Sorry, I won't post anything else on this subject until after the meeting, I promise! The only reason I'm posting this one is because it gives the mailing...
I absolutely agree! I just don't know if I like the way they protrayed it. I was not tested, but I don't go through my day to day life talking about dying....
Probably one of THE most important studies being done in Huntington's Disease [besides PREDICT HD] is the Huntington's Study Group's [HSG] COHORT Study. Why? ...
and look forward to chatting again on Wednesday. Thanks to Teresa, Renny, Bonnie, Adrienne, and Rich for their company today. Love and hugs to all, Sue and...
To all my friends @HDSC! The following letter is what has occupied my time since I moved back to our family home(now owned by my brother Geno who added a new ...
but there are still people in there at the moment. Thanks to Teresa, Matt, Pete, Tonia, Cas, Phillip, and Ashlee for their company today. Wishing everyone all...
hey ya all i really think that my hd is a lot more advanced than anyone had thought at least more like 7 to 10 years along i need a good way to tell my loved...
Hi Tonia~ Call a family meeting and gently tell your family about it and that you need their love and support. My mother says she regrets telling us about the...
Tonia, From my experience as a caregiver with my mom, I say talk, talk, talk. (She is in total denial and refuses to talk about her HD.) The more all of you...
I agree with both Cathy and Kelly. I didn't want to know if Gerry had it, but I think back and we wouldn't have done the things we have done if I didn't know...
This was posted on-line yesterday. For anyone participating in the DOMINO study or taking Minocycline, it's important you read the below HDSA coverage. I'm...
as I'm going out to a gig. Please do go ahead and use the chat room <http://pub43.bravenet.com/chat/show.php/3651366053> , and I'll look forward to chatting...
this i s an e mail a buddy of mine just sent me and i have to share it with everyone i am so excited about htis i have to let you all know about it love tonia ...
I am located in Ft Worth, TX and I'm trying to help my niece find a nursing facility for my sister who has gotten so bad that she cannot be left alone. We must...
Hi Judy, Have you check with Cheryl who is HDSA's social worker in the D/FW area? She might have some connectins. http://www.hdsatexas.org/socialworker.html ...
I am a former Nurse. I have HD now. How old is she. I they are under 40 they do not want to go into Nursing Homes. They hate because it is full of "Old...
What's a little more nuts to an HD family? Well it appears eating them can help! The Society for Neuroscience recently had its annual meeting and the HD...
If you belong to Hunt-Dis and you use the archive link to read messages [like me] or are on Digest and haven't received your digest from yesterday, there is a...
and look forward to chatting again on Wednesday. Thanks to Ashlee. Matt, Teresa, Pam, Pete, and Dave for their attendance today. I should say "shokran" not...
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