Hey Jahnnie! Welcome to the group. I hope you find some support through here, it's been wonderful for me and has kept me going. If you're looking for support...
Hey everyone, I wanted to let you know I have started a new website and I hope you will check it out, let me know what you think. Sue, I hope you don't mind if...
I'll be very late for chat if I make it at all as my twin is visiting with an estimated arrival of 8 pm. I should be available as normal on Wednesday. Please...
We have left the chat room. It was a good chat, thanks Teresa, Phillip, Ashlee and Pamala. Love and Hugs, Kelly (and Sue) ... visiting ... on ... there...
Hey all I am new here. My name is Lynn and I am from Manitowoc, Wi. I was tested for Hd a little over 2 years ago and it came back positive with 46 repeats. I...
You're an awesome lady Lynn. Welcome to the HD Support Club. You'll find that our collection of "cyber-support" sites for Huntington's Disease can become an...
Brief SSDI questionnaireThis message was forwarded to me. It was sent to the HDSA Chapters Presidents by Sean Luis, the new Advocacy & Family Service Manager...
I remembered to follow up! The second article about the Jackowski family from Illoinois is published on the Daily Herald news today! Another fantastic...
I'm with you Lynn, I'm married and @risk. Wife calls the disease the elephant in the room nobody wants to talk about, when it comes to my family. But she...
I am truely sorry to read that. I really am. I would think you would receive more support. Your spouse is supposed to be your best friend. My husband was...
Lauren, My mother had Huntington's and there were many people in the family who did not want to talk about it. Some even said that she did not have it and it...
after a quieter chat than recently but none the less beneficial. Thanks to Lauren, Pam, Teresa, Mihaela, Dave and Jen for their attendance today. Even a brief...
Part of the disease is that it makes you self every thing is about you I was lucky my husband talked when I wanted to and about what. Everybody in the group...
guess what ! we are done getting stuff out of the house and into the pod and the far garage that doesnt have any damage at all.I am so happy i am jumping for...
Thanks to the hard work of the Northwest Chapter of HDSA President, Liz Weber and their board, a Tribute Concert to Celebrate the lives of Woody and Marjorie...
thanks so much cathy you have no idea how much it means to me love prayers and all good stuff to you too tonia Cathy Miller <setright@...> wrote: Tonia, I...
but Susan, Ashlee, Teresa, Rick, Phillip, Rich, and Tina are still in there at the moment. Look forward to chatting again soon. Goodnight and God bless, Sue...
Hi Sue, I amnew to the group and would like to kow more about it. Can you help me? Thanks Jen Sue <sue_twin2@...> wrote: if anyone wants to join me. ...
Hi, my name is Jen and I am new to the group. I find it so hard to get through each day as I am always so tired and also have a 9 year old son to take care of....
this is a great group for support Jen. Do you have HD or are you a caregiver? Regardless, HD is a exhausting disease to handle, no matter what end you are on....
Hi Lynn, Let me be one of many to welcome you to the group. I am sorry for your diagnosis but just remember hope can never be lost and things only look bad if...
Amy- my heart goes out to you. I will keep you in my prayers always. I pray for your strength, hope and faith. I break down every time I think that my daughter...
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