Cheryl, I'm sorry to hear of your son. My daughter too has juvenile huntington's, she is now 27. If you'd like to contact me directly you can email me at...
Cheryl, Hi and welcome. My 21 year old daughter, Heather has JHD also. If I can be of any assistance, please email me or post here. Lkirkby@.... I live in...
Many of you know Shana, she has been an NYA member since its inception in 2000. Shana is one terrific and dynamic young lady!! Shana we are SOOOOO proud of...
and thank everyone who attended for their support. I won't be available for the chat on Friday as I'm going to see Arlo Guthrie, and Kelly is having her...
Help - Needs Meds Advice - Cheapest Way To Get (Ambien, Seroquel, Alprazolam) Help I need to get my mother meds - she hasn't had any of them for about a month...
Hi. Before my daughter got medicaid, we got her Seroquel from the drug manufacture, Astra Zenica. They have a drug patient assistance program that gives you...
hey everyone! My mom HD and she means a lot to me.... so... I went and got a tattoo of the HD logo, and its not all the way done yet becuz im getting "CURE...
... get ... and ... paid). ... pay ... provide me ... continue to see your mother. As to meds you might call the drugs company and explain the problems. They...
Hi All, We had Heather's appointment with Dr. Ashizawa today. He said that the EEG showed no seizure activity. I asked if this meant that she wouldn't have...
Hi Lisa, I don¹t know where you live in Pa., but here are some possible contacts: PENNSYLVANIA Support Groups Mid-Atlantic Region Regional Development...
See below....once you register a letter will automatically be sent to your state reps on your behalf. Hopefully this can be linked to HDSA website! Movement...
Hi, Read your note and just wanted you to know that I'm here for you. I don't get to a computer very often, but you can write to me and I will CATCH UP when...
Hi Joan! You quote a message posted by Bob 3.5 years ago so the people who were at that chat have certainly left! In fact, the chat room we used to use has...
{{{{{{{{{{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}} hugs and love and prayers to you about all of this tonia messer-heller joan <messerheller@...> wrote:...
as I have a sore throat and fever. Hopefully Kelly will be there but if not, please do use the room without us. Wishing everyone the best weekend possible. ...
Hi All, Sorry that I have not updated ya'll on Heather lately. I have been trying to pull it together after that last dr visit last friday. Today we had...
Welcome to gwenporte - our 600th member of the club everyone wishes they didn't need to join. I no longer welcome members individually as they join but thought...
and look forward to chatting again soon. Kelly probably won't be at the chat on Wednesday but I should be. Wishing everyone the best week possible, Love and...
Hi all i just rejoined the group last week after a couple years of not going into HD chat and groups so i dont know everyone but recognise a few names from the...
Dear Lucy, I'm so sorry I haven't replied sooner but you know that you are in my thoughts and prayers daily. Regarding the difference of opinion between the...
Dear Mel, Welcome back! We did chat a few times at the old MGH room back in the days when I was a relative newcomer to the online community! I'm not surprised...
after a great chat. Thanks to everyone who came to chat and apologies to Susan who appeared and disappeared - better luck next time, and Ashley who seemed to...
... apologies to ... Ashley ... Hi Sue, Been a while, trying to get in yahoo for a month or two at least... I hope things are ok. Just lost contact with...
Hi all, Slowly but surely I feel as if I'm pulling out of what I think was just down right SHOCK... Even though I knew my hubby had HD something about getting...
