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6381 Jean E. Miller
hdcureit Offline Send Email
Jul 2, 2006
4:42 pm
The link to order the Huntington's Disease Caregiver CD's on the HDSF has been updated to include shipping & handling to Canada! The site has also been changed...
6382 Jean E. Miller
hdcureit Offline Send Email
Jul 2, 2006
7:38 pm
Phase III of the Huntington's Disease Memorial Quilt made it's grand entrance and unveiling at the HDSA National Convention in June, 2006! As most people...
6384 Sue
sue_twin2 Offline Send Email
Jul 3, 2006
6:06 pm
Woops.... the sun got to me and I'm 2 hours early! Will stay until the usual end time!!!!! Sue...
6385 Sue
sue_twin2 Offline Send Email
Jul 3, 2006
9:44 pm
and look forward to chatting again on Wednesday - hopefully at the right time!!!!! [Duh] <http://www.smileycentral.com/?partner=ZSzeb001_ZS> The British...
6386 susie
susieangels Offline Send Email
Jul 4, 2006
2:35 am
Just wanted to let everyone know that I have finally got my convention pictures uploaded to my webshot albums. The first link is to the general album, the...
6389 Jean E. Miller
hdcureit Offline Send Email
Jul 5, 2006
3:10 pm
Kudos' to the Indiana Chapter and it won't hurt all of us to join in on this new Campaign-Oprah HD Awareness! Please, pass this along to all your friends and...
6391 Sue
sue_twin2 Offline Send Email
Jul 5, 2006
4:20 pm
Source: Belfast Telegraph <http://tinyurl.com/q2qh2> Today, the nation's universities are saluting the pioneers whose research has resulted in global change....
6392 Sue
sue_twin2 Offline Send Email
Jul 5, 2006
4:50 pm
Marsha Miller and Steve Ireland of The Huntington's Disease Advocacy Center (HDAC) <http://www.hdac.org/> have established a new chat facility and have...
6394 Sue
sue_twin2 Offline Send Email
Jul 5, 2006
7:42 pm
after a great chat! It was wonderful meeting Tina and for everyone to be able to share knowing that people understand rather than having to start explaining...
6395 Ken Novak
ken_novak Offline Send Email
Jul 6, 2006
3:57 am
... Hello, this is Ken, wife's name is Trish who has HD... Long time since made chat contact. Will try to participate. Thanks, good bye--- ...
6396 Sue
sue_twin2 Offline Send Email
Jul 6, 2006
7:04 am
After 3 months of folding by our team, these are the current statistics for the three Huntington's Disease teams I am aware of who are folding proteins for the...
6397 Sue
sue_twin2 Offline Send Email
Jul 6, 2006
7:14 am
Hi Ken! It would be great to see you in chat if you want to participate. As I've said many times before, all members are just as much part of the club whatever...
6398 Sue
sue_twin2 Offline Send Email
Jul 6, 2006
2:20 pm
Further to a discussion we had in the chat room yesterday, I thought the following article may be of interest. Journal = Clinical Practice and Epidemiology in...
6399 Sue
sue_twin2 Offline Send Email
Jul 6, 2006
3:16 pm
Also arising from yesterday's chat, the following may be of interest. I'm afraid I can't afford to purchase the full article personally but for those who wish...
6400 Dave Hodgson
spketdog Offline Send Email
Jul 7, 2006
2:00 am
I can only reinforce Sue's call for more folders. The Protein Folding Program, at Stanford University, is much like the old SETI program that hoped to find...
6401 Sue
sue_twin2 Offline Send Email
Jul 7, 2006
7:40 am
Another topic discussed in chat on Wednesday concerned a potential volunteer's rejection to participate in a clinical trial. A good site to look at to find out...
6403 jeanette_skywalker
jeanette_sky... Offline Send Email
Jul 7, 2006
8:16 pm
Yes it is me folding as Ripleydk. I can't keep any "secret" from you, huh :-))))) Lots of love Jeanette_skywalker aka ripleydk...
6405 Sue
sue_twin2 Offline Send Email
Jul 7, 2006
11:06 pm
and wish everyone the best weekend possible. Arthur - sorry if you returned and found me gone but bed was calling! Hope to chat again soon. Goodnight and God...
6406 Kelly
ksh26052002 Offline Send Email
Jul 7, 2006
11:31 pm
Sorry I missed ya Sue upon returning. Thanks all for such a fun chat it was nice to catch up. Love and hugs, Kelly and Sue...
6407 Tonia
happytonia4 Online Now Send Email
Jul 9, 2006
3:36 am
i wanted to tell you all hello that i am still here and reading i just been very busy i wanted to tell you all i finally got my ssi junk figured out and i...
6408 Frank Livermore
justlinda_03 Offline Send Email
Jul 9, 2006
1:47 pm
8 .2 deedrvisit6906 001 deedrvisit6906 002 deedrvisit6906 003 deedrvisit6906 004 deedrvisit6906 005 deedrvisit6906 006 deeBday6606 001 deeBday6606...
6409 Frank Livermore
justlinda_03 Offline Send Email
Jul 9, 2006
4:07 pm
Dear Folks - Linda & I are in talks with lawyers about what happened to Delight when she was in a Louisiana NH. We had already hired a lawyer shortly...
6411 Susan Wendling
gangel24 Offline Send Email
Jul 10, 2006
2:19 pm
-Good morning Sue and Group.. To start. I have been trying to post this for 5 days. Yahoo would not let me in the room. I tried posting via the web site at the...
6413 Sue
sue_twin2 Offline Send Email
Jul 10, 2006
9:32 pm
but Mindy and Tina are still in there at the moment. Thanks to everyone who came to chat today and for being there for each other. Look forward to chatting...
6414 markus4412 Offline Send Email Jul 10, 2006
10:36 pm
Hey everyone, i post very infrequently on here, but felt the need to say that last week, I went to the genetics clinic, where they took a blood sample to...
6415 Frank Livermore
justlinda_03 Offline Send Email
Jul 10, 2006
11:46 pm
Hi Mark, being a retired Teacher, I really hope you flunk that test.... Our prayers are with you, enjoy each and everyday, its' a gift so treasure them. In our...
6416 susie
susieangels Offline Send Email
Jul 11, 2006
2:54 am
Keeping everything crossed and hoping for NEGATIVE!! Just remember, whatever the outcome, you are not alone! Hugs Susie Illinois Chapter HDSA TEAM HOPE WALK...
6417 jeanette_skywalker
jeanette_sky... Offline Send Email
Jul 11, 2006
6:51 am
6418 miller6277 Offline Send Email Jul 11, 2006
7:07 am
Hi! I am a new member and have been looking for a HD support group. Thank you for having this. What I would like to know is it common for HD patients to not ...
6419 nightshade
nightshade_cnd Offline Send Email
Jul 11, 2006
2:37 pm
Don't even think that way Mark. I was only 19 when I was tested for exactly the same reasons. I'll send out my best mojo for you. ... nightshade || webmaster...
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