A youngster at 54! That has sure put a smile on my face many times since monday evening :-)) I was cut off from the room, and couldn't get in. Love Jeanette...
Two Special Topics! 1. HDSA's The Juvenile HD Primer - Guide To Best Practices is almost completed 2. 2006 HDSA Convention to hold "JHD Track" sessions for...
you are in my prayers and good thoughts go your way through these tough times we all will miss you but we understnad also love you girl hugs and love to your...
Hello all, my name is Beth Magallon maiden name Marino. I am 28 yeas old looking for extended family. My immediate family are located in Brookfield, ILL. My...
so I'm sorry if Ashlee returns and finds it empty. It was great to see some of the "oldies" in there today..... not old people, just people from my first days...
Does anyone know if HD,in the early stages of the disease, can affect the immune system? I haven't seen anything on the subject, so I'm guessing it doesn't,...
Hi, I'm no expert but I'll give you my opinion. I don't know of any thing from HD that directly affects the immune system, but some HD symptoms could make...
Hi, you can post on the site, some of us chose to get the posts emailed out to them so you can get responses that way. Scheduled chats are Monday (3pm...
Hello my nane is paul iam a 49 years of age and i have been living with H.D since being diagnose gene positive in march 2002.i am only the 2nd person in our...
hello paul sorry to hear your bad news i was tested gene positive in 2000 and have recently learned that i have hd itself in may of 2005 my sister emily and i...
Hi paul i just tested gene postive last week. I am 32. I am the third generation woman who will devlop the disease, My grandmother is 74 living with HD and my...
The following message was posted by Orhay, a new member from Chicago, yesterday but for some reason has not shown up in the club despite being approved at the...
Orhay, contact the Illinois Chapter office at 630-443-9876, and we can steer you in the right direction for information and help for your cousin. Dave Board...
It appears that the old MGH Classic Chat rooms are no longer available. I accept that they were hardly used but they provided an opportunity for people with...
hi paul ive known there was hd in my family since i was about 15 im 39 now and my father has had hd for 10 years now im at risk but until this year i prefered...
thnaks for posting it sue orhay sweeety first try t orelax and realize that first off they are very close to a cure and i can taste it the cure i mean i can...
wea re here for a reaosn to kick this thing in the ass for the next generation so they dont have to deal with this bull shit at all so lets keep a positive...
we are so much stronger than this darm crap it isnt funny this is th e way we should all live our lives on our terms and not some disease it might be a tiny...
i have been still dealing with this mess of ssi trying to get my money already i have al sort of dreams i feel i wan to do wiht that money like get the tatto...
Hi hello everyone,a big thank you to you all for taking the time and making the effort to respond to me. It hasn,t been a good weekend for me try as i might i...
it is amazing how much a group like ours can help you are not alone at all! dont let this shit get you down it isnt wirth it. not at all! trust me i knwo it...
My 18 year old cousin was just diagnosed with JHD and I am just overwhelmed right now. I don't know what she is planning to do now because she refuses to talk...
I haven't added lots of new links as the Activity summary on Home Page suggests, but simply deleted dead ones and edited and updated others. I didn't want...
yesturday i had a bunch of my family and exended family over fo rthe big game yesturday , we had a blast and ate way to much junk food. i got to spend time...
Dear Orhay, I am so sorry for your family. How wonderful that you are such a concerned cousin. If nothing else right now, that must be very comforting to her...
thanks for all the work and stuff you do with this group it is really aprectiated i know how tough it must be. hugs love and prayers to you and yours tonia ...
Dear Paul, While I don't have HD, my father and my oldest brother died from it. My younger sister has it now. As I am sure you have found you go through a lot...
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