Hello to all of you wonderful folks. I have been so busy lately and this is the first time I've been on the computer in a long while. We are hanging in there....
Hi Lucy! Gosh I am so sorry you are where you are right now. I know that is not reasuring or even sound right, but I want you to know that you are thought of. ...
> Where is the library you were talking about?<br><br>Shell, don't worry about it. One of my friends is a librarian for the Clark Country Library District....
Lucy,<br><br> People are amazingly stong and resilient. I don't know much about the medicine, but as it starts to take effect on his muscles, I would think...
Hello! Thank you all for your support. Kirk is doing better. It is truely amazing! We increased the Tetrabenazine and the movements are almost nonexsistant!!...
ME RECIEVED EMAIL FROM MS TISSY[DARLA] THAT [GRANNY] HER MOM PASSED AWAY LAST NITE..WE KNOW THAT GRANNY IS IN A PAIN FREE WORLD NOW...ME'S LOST FOR WORDS SO...
I hope everyone has heard the news about EPA by now. Jerry has published an EPA FAQ on the Lighthouse updates page, including how and where to get it. ...
Hi Everyone...This looks like a great place to be.<br>I lost my Mom last March from complications from<br>h.d. I was involved in her care for the past ...
Hello, I am also a new member here, I am 30 yrs old, lost my grandmother to hd,3 uncles have it and 1 cousin and I believe my father may also.I believe I am ...
Hi Matchbox201,<br>My husband started showing signs 3 years ago when he was 29yrs. Even though everyone is different, I would be happy to share with you our...
Hi Bunnie,<br>Sorry to hear about your Mom. It sounds like you have and still have a lot on your plate. My husband tested positive 2yrs ago at age 30 after we...
> I hope everyone has heard the news about EPA by now.<br><br> HDAC and HD Foundation do not seem to have heard the news. Not trying to slam Jerry and the...
Doug wrote:<br><br>>HDAC and HD Foundation do not seem<br>>to have heard the news. <br><br>Doug, you probably mean HDSA, not HDAC, and yes HDSA has heard...
Hi Colleenm 12, thank you for responding.When would be a good time to reach you online?I am just curious as to what his initial signs annd symptoms were and if...
Thanks for responding! I'm sorry to hear about your hubby. This must be alot for you to handle<br>let alone taking care of your kids! He's so young,<br>is ...
Good evening matchbox201. This is the first club I have joined so, I don't really have a usual time except evenings. Thinking back, I remember him telling me...
Sorry, I completely omitted a respone to your nighttime inquiry. Nothing was different about this time of day until about 6 months ago. When he was starting to...
Since I'm new here, I don't really have a usual time but, it will most likely be evenings. Boy, I don't really feel new here since I read this site a lot but,...
> Doug, you probably mean HDSA, not HDAC<br><br> Actually, I did mean HDAC (www.hdac.org, the Huntington's Disease Advocacy Center). I just did a ...
Colleenm_12, Thanks for the info,It all seems oh to familiar to me, Unfortunately I have not tested and Dont know if I can do it.From the violent outburst to...
Doug, since I am one of the "they" at HDAC I can assure you we heard the news. HDF and HDSA know all about it too but they don't update their websites as often...
Doug, you have now heard from two thirds of HDAC! Here is confirmation that Laxdale has received orphan drug status for its purified version of EPA to be used ...
Lynn, I didn't see any mention of ethyl-EPA in the schizophrenia study. Do you know if they used the "regular" EPA found in fish oils?<br><br>Cristy...
Dr. Lynn,<br><br>> Here is confirmation that Laxdale has received orphan drug status<br>> Here is a link to a study of EPA and schizophrenia that HAS...
Hi Colleen...We have long term care and tons of<br>life insurance in place, thank God. We have my in<br>laws to watch our kids the day of the blood draw and ...
Doug, we have changed the EPA link on HDAC to the Lighthouse updates page because new information is coming in every day (a lot of it directly from the Laxdale...
