Hi Gayle, Thanks for your support, and I apologize if my questions are a bit different to exactly understand, but english is not my born with language. But...
Hi Wendy Thanks for your answer and your support. I think it's a very good idea to actually get checked once a year by a doctor (and ofcourse also to use your...
Dear Jeanette, Please don't feel you need to apologise for not being so active here – I'm sure we all understand how time just slips away. You were so...
By Ben Pindar, Community Newswire HEALTH Marathon London, Today, 1:14pm A dedicated athlete was today back at home enjoying a well-earned rest after completing...
My sister sent this to me this morning, and I felt it worthy to be passed on. You may or may not have seen it before. THE MAYONNAISE JAR AND COFFEE When...
I didn't grow up knowing that Huntington's Disease was in our family. My mother was the first to be diagnosed and it was a shock to all of us. For many years I...
I am in the chat room if anyone wants to join me. ... From: Yahoo! Reminder To: huntingtonsdiseasesupportclub@yahoogroups.com Sent: Tuesday, March 01, 2005...
Hi Gayle, Thanks for telling your story. I'm glad to hear from a pHD who's able to express their anger and also tell how they cope day-to-day with HD and how...
thanks John, Lisa and Karry for joining me in chat, I enjoyed it. I am leaving the room now (yes Sue I am learning ) Kelly has left the chat room! Good...
My littlesiter got her test result yesterday. She is HD-negative. I must say, I'm VERY HAPPY for her, allthough I also feel sad that it now is only me. I was...
Jeanette, Thank you for sharing your very raw feelings with us. Your right, this disease is just not fair. You've been dealt a bad hand, but I think that you...
{{{{{{{{{{{{Jeanette}}}}}}}} I understand how difficult this is for both you and your sister. My 2 boys went through similar situation. My oldest son had...
Hi Jeanette, I know you are feeling alot of pain right now. This disease is so hard on everyone. You have a right to cry. You have a right to feel (why...
Dear Jeanette, I am not surprised you broke down in tears at the hospital as you have been on the most extreme emotional roller coaster ride for the last three...
I have just read a review in The New York Sun about this novel whose main character is a neurosurgeon which includes the following: - "Early in the day, he...
I listened to this webcast and transcribed the following comments made by Martin Schmieg which I thought would be of interest to you: - ".....Huntington's...
Please join me in welcoming hirotsu05 who joined us here today. We never like the fact that people need to join us but are always glad that you found us. We do...
Hello, Thanks for the welcome My name is Anthony, I'm 28 and living on my own in the UK. My Mum was diagnosed with HD in 1996 she is now 57 and looked after at...
Hello Anthony! Thanks for posting your introduction. Dealing with Huntington's is devastating for everyone but especially so for those at risk. I am very glad...
Anthony, I am sorry to hear your story and i think the only comforting thing i can tell you is that i truley understand. My Mom is your Moms age with HD. She...
Hello Colleen, Thanks for your reply to Anthony – I am always so grateful to our members here who read a post and reach out to help each other, particularly...
Hello messerheller, It looks as if no-one was around earlier for you, sorry! I am at the computer on and off throughout the next 14 hours or so and will be ...
The usually fun-filled "Big Show" on WPLJ (95.5 FM) took a serious turn yesterday morning when hosts Scott Shannon and Todd Pettengill struggled to talk about...
A NATIONAL centre to help couples who fear passing on dangerous genetic conditions to their children is to open in Glasgow. For full story go to : -...
Thank you I'm very sorry you are in the same situation! I spoke to my Sister last night and told her I was going to get tested soon. I wrongly thought I could...
You are very welcome, Anthony! We actually live really quite close to each other and I was in Gravesend on Monday! If you are interested, there's a local...
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