12/09/04 Hi my name is Connie, and my 21 year old Daughter has Huntingtons Disease. She was diagonised at the age of 19, and her Father passed away in March...
Connie, How nice of you. I think reaching out to find her a companion is a fabulous idea. I'm sure she's very lovely! Good luck! I wanted to ask a question...
Connie Jenkinson writes: Connie, get your daughter involved in the National Youth Association of HDSA. That list is FULL of young people from 9-29 who have...
Hello to all HD friends and family. I just wanted to add another HD angel to our list. My daughter, Beth Ann, has finally won her battle with this horrible...
Hi April thank you for the email. I do believe that their smells get mixed up becuase my Daughter at one point could smell things that no one else could. But,...
My heart and prayers go out to you and your family in the loss of your young daughter. My daughter is 21 and was diagonised at 19. Her father passed away at 43...
I've never been in the chat rooms just through emails. Who in your family has HD? My daughter has it and her father passed away in March 2003 from it. ...
Tell me if you have any luck finding her a male companion. I am in the same situation as your daughter. I am 22 and was diagnosed in March. I lost my mother...
Maria / Connie: My heart goes out to both of you. My daughter is 25, although she wasn't diagnosed with it until she was 23 she was in 'mid stage' when we...
((((((((((Maria)))))))))) This disease is so horrible, it slowly steals the people we love. Beth Ann is dancing before her Lord now. Praying for you. Tom ... ...
I'd like to introduce myself, and tell you a little about me. My name is Susie Leck and some of you may know me from other online groups, so already know my...
Hi Allison, My name is Colleen, i just turned 27 and live in Colorado. I am at risk but have decided not to get tested. I would be more then happy to be your...
Hey there Colleen, this is nursecharlie37 and I got your emial to allison so maby she didn't. just to let yo know hon its ok but maybe it was error to me huh.?...
just testing-i think this site might be down me <nursecharlie37@...> wrote:Hey there Colleen, this is nursecharlie37 and I got your emial to allison so...
Last Month I announced to the list that I was running a Ebay store and would donate 25% of the net profits to Huntington's Disease for research. The store is...
Dave sent this out to Hunt-Dis and HD Caregivers, and I am forwarding on to you all, as I know that many of you know Bill. Love and hugs Susie ... From: "Dave"...
Note: forwarded message attached. __________________________________ Do you Yahoo!? The all-new My Yahoo! - Get yours free! http://my.yahoo.com [Non-text...
Hi there, I'm Lee-Anne, and my husband Allan has discovered that Huntington's runs in his family, the first diagnosis being his older brother. He has decided...
Hi Lee-Anne and welcome to the Support Club! I'm sorry to learn that you have discovered HD in Allan's family and that his older brother has been diagnosed. It...
Firstly I must apologise to everyone for abandoning the club – this was not through personal choice but due to circumstances beyond my control. I'm thrilled...
The Huntington's Disease Scholarship Fund (formerly the Hunt-Dis Scholarship Fund, still HDSF) is for ANY member of one of the online HD support groups....
but there are still people in there at the moment! It was great meeting new friends and catching up with old ones again tonight.... thanks for joining me. ...
Japanese team succeeds in stem cell therapy on monkeys with Parkinson's ~ report on Yahoo News today. TOKYO (AFP) - Japanese researchers said they had...
I am married to a man who has huntingtons and is in FULL DENIEL...thinks we are all CRAZY and he is fine....He is in the ANGRY mode.. I need help trying to...
Welcome to the group Beth – it looks as if you need all the support you can get to deal with the situation you describe. You asked for someone to give you...
I can't attend the chat tonight as I should be in bed now as the alarm is due to go off in 4.5 hours! I do hope others will be there to support each other. I...