Hi, I have been a lurker since last year when my mother was diagnosed with Huntington Disease after ten years of unexplained symptoms. Mother was adopted. My...
Hi Carol, I don't have an answer but I wanted you to know the fact that you asked the question makes you a good sister already in my opinion. Has your sister...
Hey everyone-I have not been on here for a very long time. Right now I am trying to find a nursing home for my mom. I live in Denver and i would think there...
My dad and I were taking care of my mother for years, when do to her mood swings and us never being home because we both needed to work, we had to put her in a...
Coleen, Hi! Contact the Huntington Disease Society of America, they usually have counselors that can come to nursing homes and educate the workers, sometimes...
Hi all. I would agree with the counseling thing as well. I'm not sure but I've heard (third party) that they can do sperm testing but I'm not sure about egg...
What do you all think about long term care insurance? I work for a school district where it's offered as a group plan and also lived through my father having...
Hi Victoria, I would say if you don't want to test then don't! Do what you feel you have to do to make life easier on yourself. The worry will be there being...
BUY THE LONG TERM CARE INSUANCE NOW BEFORE YOU ARE TESTED. IF YOU ARE POSITIVE , YOU CAN'T GET LONG TERM COVERAGE. IF YOU TEST IN THE POSITIVE IN THE FUTURE,...
hi my name is kelli. i am doing a research project on huntingtons disease for one of my classes. i chose to do it on this particular disease because one of my...
Victoria, I think it's very forward thinking. And you're right... you don't want to burden your family with the cost of long-term care or having to "pick up...
I am a new member. My mom had Huntingtons Disease and she just died two weeks ago today. She was 49 years old. I was diagnosed in 1998 at the age of 23. I know...
Victoria, if you're at risk, you should get your insurance now, both long term as well as life insurance. Buy the most you can afford, remembering that if you...
Hello, You came to the right place then.. We're all here for support.. and once u get to know us.. its just like one big happy family. Feel free to contact me...
Cassandra, I am so sorry to hear about your mom. I know what you mean about her death not being a shock. It is hearbreaking to see a loved one go through so...
10/18/04 Hi Kelli, my name is Connie Jenkinson and my Daughter has Huntington's Disease. I would be more then happy to answer any questions for you that I can....
Hi Cassandra, I'm sorry about your loss of your mother. I know that's really a tough thing to go thru. I remember when my sister died in 1978, I said I wasn't...
I'm feeling the effects, my mother is here this week suffering from alzheimers (sp?) but dealing with a juvenile huntington's daughter, in some cases I have...
Bonjour, je suis sandra, francaise, 28 ans. Je ne suis pas porteuse du gene de la maladie ma mere a la maladie depuis plus de 20 ans, et ma soeur depuis 8 ans ...
Here is a French to English translation of Sandra's message using the online translator Babel Fish. A few words didn't survive the translation but the general...
Hello, I am an Australian living in American. I am HD+ I have no signs at this stage. I was tested 7 years ago. Last night at 2 am US time I received a phone...
11/5/04 I haven't heard anything on this, but it sure would be wonderful. My 21 year old daughter is positive and shows alot of the signs. Her Father just...
I haven't heard anything recently... A while ago there were reports that mice and pig cells might be used to replace cells lost by the disease, but I haven't...
Here's my best guess about what your friends heard. I've done an exhaustive search of the Australian media web sites, Pub Med, sites for science press releases...
I knew if it was out there you guys would track it down! Sounds as if this is what was being reported - thanks Jean and Marsha! Tom ... From: Jean E. Miller ...
Living Cell Technologies (ASX: LCT), has today released results of pre-clinical studies demonstrating that its specialised therapy protects nerve cells in the...
Monday, November 08, 2004 Stem cell research poised for growth Company based at Harbor-UCLA is ready to apply for Prop. 71 funding to support the promising...
where do we get these NeurotrophinCell? Is is derived from human embyo's or is it synthetic? ... From: wicked_littlewitch<mailto:no_reply@yahoogroups.com> ...
Following a segment on Channel 7 last Friday night on Huntington's Disease, Prof Elliott responds to one individual's questions. We hope this is helpful to...
