Good Morning. First I would like to express my gratitude to this group. I read all messages I recieve. I don't always respond. My prayers are with all of you. ...
Hello, I am going to give you some info in your state and some of the states that surround the one you are in.. as they could be closer for you then the one's...
Sue: I totally understand where you are coming from, it is frustrating sometimes but keep trying, you'll come across one person one day who says, oh ya,...
Iowa City Press-Citizen Monday, July 5, 2004:- For the first time, a study has shown that gene therapy delivered to the brains of mice can prevent the physical...
... LeAnn, Yes my daughter has been home with some turbulent moments with her mom, but she's been hanging out with her older brother and having a great time! ...
Kim, I'm glad to hear from you and that everything is going relatively smooth. That is great that your son is willing to hang out with his little sister. Most...
Dear Support Club Members, I invite all of you to check out the new additions that the Huntington's Outreach Program for Education at Stanford (HOPES) has ...
I'm not sure how many of you live near or in New Jersey, but there is a charity softball game between WPLJ radio and WABC tv. This is the link to find out more...
Sue - where do you live? I live in Libertyville, IL. There is a Movement Disorders clinic at Rush Presbyterian in Chicago and there is a dr. who specializes in...
Does anyone know if I can get the genetic test done privately here in the UK? What would the cost be? What details would they need to get from me? Would I...
hi, i am new to this board. i dont really know where to start, here goes, we found out i was pregnant last august with our first baby, my boyfriend chris's mum...
get into counceling now. you don't have to let fear distroy your life. find out all you can about his personal HD. happiness is a choice, even when someone...
hi nic my wife tested posative 2years ago it was really hard at first well it still is .but you get through it .i was like you and did not know wot to do.but...
hiya steven, thanks for your reply. i know i shouldnt moan, but i just felt i needed to get it out or i would go mad. does your wifes mum or dad have...
HIYA NIC listten lass think of all the good times you can have . wen i said lastnight about my wife tracey. getting tested posative 2 years ago i ment she had...
... <steven.rudd3@b...> wrote: hiya steven you are so brave, i eally admire you and your wife tracey. i think i am just having a down time at the moment. chris...
... Ollikainen <earjolli@y...> wrote: hiya, i have got the number for a councellor, i am trying to pluck up the courage to ring her, i dont really know what to...
hi steven my name is andy and i live in york, my brother is 37 and has hd. if you need to talk feel free to contact me regards andy ... From: STEVEN RUDD To:...
hi my name is kathy. i am a nurse that has been taking care of an hd pt. he is 36 yrs old.same age as me and thats what caught my attention when we admitted...
Hi, are you sure it's actual vomiting or could it be more like gagging and choking, and spitting things up as a result? A swallowing study and a consultation...
hello cure my name is tammy i'm sorry to hear about your friend my moyher had the same problem and now has a feeding tube she couldn't hold anything down but...
hello all! thanks so much for the replys. he has been seeing speech therapy since admission tom keep an eye on him. he has had a problem with spitting up since...
Kathy, my name is Ken. My wife Trish has HD in later stages. She is 56. I read with sadness how Trish will suffer with choking and vomiting in the near ...
Hi Ken, This is Ian from Brisbane, Australia. I am 56 too and HD Pos, but have not progressed as far as Trish. My older sis Gae who just turned 59 is still...
Ken / Kathy: My name is Kelly, I too have a daughter in the mid stages of juvenile HD (25 yrs old) and currently suffers choking on liquids, when I read the...
Hi Everyone, I just wanted to put in my opinion while the topic of feeding tubes is going on. Remember it's only one more thing to consider, everyone has to...
Pamela, I hear you and feel the same way as you. The kids went through the same thing this past year with their mother and it was so hard of a decision but one...
Hi guys, this feeding tube issue is one of many reasons advance directives and living wills are a good idea. In the event HD is diagnosed early enough that the...
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