My wife was diagnosed with HD last October. This diagnosis explains a lot of problems we've had in our family for quite some time, behavioral mostly. We have a...
Hey.. I got some suggestions for your children.. if they get online.. theres a group called the NYA its for youth aged 9-29 living with hd.. there are so many...
Dear Kim, My goodness, what a tough spot to be in. To daily have to choose between being a good spouse and a good parent. I don't have any good advice, because...
I have a dear friend who was diagnosed about 4 years ago with Huntington's disease. I would love to find out as much as possible about the general prognosis of...
I had similar problems with my mother for years before we knew she had HD. She was never particularly nice to us, but she became increasingly uncompromising...
I had similar problems with my mother for years before we knew she had HD. She was never particularly nice to us, but she became increasingly uncompromising...
I don't get home from work until after midnight (EST) and am busy during the day other than early mornings. Every chat or support group I log on to is always...
Hi Connie and welcome to the group. I am silent most of the time. My sister in law has HD along with both of her brothers. I joined this group so we could...
Hello Connie. Im Tara, 24 and at risk for hd. My mom has hd too. If you want to talk sometime feel free to email me at tara@... or message me on yahoo...
Kim, I was just wondering if your daughter has come home yet for the summer, and if so, how it is going. It it such a hard thing to be caught in the middle and...
Hello Tara my name is Rita and my daughter (10) is at risk for HD Her grandfather past away last year from the disease and her two younger step-sisters (8) and...
Hello my name is Rita and my daughter Jacquia is at risk for Hd. Her father and 2 step-sisters have been diagnosed. She also lost her Grandfather with HD. I...
hello connie my name is Rita my daughter is Jacquia and she is 11. She is at risk for HD her father and 2 younger step sister have it and her Grandfather past...
I have been a subscriber to this group for eight months or so, but this is my first post. First, I want to thank everyone for their willingness to share their...
Hey, I don't write on this list very often, but let me tell u a bit about my family history.. My maternal grandmother has tested pos for hd.. she is in her...
I just found your group today. I am 28 and from Finland. I am sorry to say, I am not with my name, because my husband doesnt want me to talk about HD to...
My mother has been diagnosed with HD for about 7 years now. She is doing well but this year she got diagnosed with breast cancer. Her oncologist says she is...
You could try invetro... then they test the fertilized eggs and implant the ones without hd... they don't have to tell you the results if they found any with...
Hello sorry it took me so long to write back but my net was down. I am sorry to hear about all your daughters familey members having HD it must be tuf i only...
Hey i am sorry it took so lon for me to reply mt net has been down. My mother is 46 and has HD b/c of my grandfather. My father and her do not get along so he...
Thank you Tara, For your quick reply. :) I will talk to my husband about inverto. He is the one who suggested testing the fetus. (And yes, they do that in...
I can understand your concerns about having another child knowing your husband has HD. I was tested for HD when I was 19 so I could decide if I was going to ...
I would preface this whole message to say I am not a counselor or that my advice can be taken for aything other than just the thoughts of a friend. Caretaker...
I have read some of your links. There seems to be lots of medical-trials going on. We arent rich people, and I am going back to school. But still I would like...
My mom said that she wouldn't have had kids if she had known... Its hard for you to understand not being at risk.. what we have to go through every day.. but I...
