... we ... Also, ... enough ... known about hd since i was 15.i'd like to help in ne-way i can with the chat rooms.i have quiet a positive approach to hd altho...
Thanks to Pat and Wendy for volunteering to help with the chats. I have set up the Calendar to post reminders on the scheduled chat days of Tuesday and...
Hey everyone.. I just wanted to forward this to let you all know what's going on at USF Dear all associated with Huntington's Disease, Dr. Zesiewicz at the...
My mother was diagnosed with HD about 8 years ago. Her weight has gradually been decreasing, she is now close to 100 lbs. She blames my father for the disease...
Hi Joel, I am sorry to hear of the trouble in your family. I think that the best you can do for your mom is to let her know you care, and try to get her to...
Greetings to all- Thank you for allowing me to post this. When I was looking for a subject for my Master's degree, I became interested in HD. I work for a...
hi jeanie, thanks for posting, if you could email me that emailable info, id appreciate it, as im a caretaker at home for my father in law who has HD my...
Hi Barbara, Can you send me your full email address or street address and I will send the info to you. It seems like I can't attach a file in this chat room....
Hi, my name is Connie Jenkinson and my daughter has Huntingtons Disease. She was diagoinsed at the age of 19. She'll be 21 on Sunday the 18th. Her father...
Hi Connie, I have been trying to post to you since last night. This will be my third post, but they are not showing up. I'll have more time over the weekend...
Connie.. Does your daughter use the internet??? There is a group called the NYA it's a national youth alliance for youth at risk, who have hd.. who have tested...
http://groups.yahoo.com/group/ukhdyoungatrisk Hi, i've set up a yahoo group for under 29s from Britain that are at-risk with HD. If that includes you, then...
Welcome to the gang Michelle! My name's Michelle too and I look forward to hearing your stories and you becoming part of our cozy little family. We're all...
Hello Michelle, My name is Ian from Brisbane I am 56 and hd pos. My Yahoo id is ... oonied. You are welcome to add me to your list. Yours Faithfully, Ian...
hi michelle, im wendy,38 myself this year,i live in england and would be happy to get to know you.drop me a line anytime babe. hugz wendy shellycool1965...
Hello All: I just wanted to say hello to everyone and tell you a little bit about myself. My name is Judy, I am have been happily married for 22 years and...
Hello. I'm new to the group and thought I'd introduce myself. My name is Jennifer. I'm 26 years old, and I was diagnosed with HD 6 years ago. It comes from...
Hi Judy, Welcome to the group. I'm sorry to hear about the situation. The disease is hard for every family. Don't worry you're not the only one dealing with it...
hi jennifer, welcome to the support group, my name is barbara, i dont have HD but my father in law does and lives with us and my husband is at risk, where...
I live just a bit north of Philadelphia, PA. ... ===== nightshade || webmaster candelabra productions www.candelabra.org __________________________________ Do...
I grew up in Media, PA: a small suburb of Philly to the southwest.. ... ===== Lizzie Rodriquez lizzied@... __________________________________ Do you...
Hello. if your daughter wants to meet youths from all over the world.. (most are from the usa) theres a yahoo group called HDSAYouth Everyone but the adult...
My wife was diagnosed with HD last October. This diagnosis explains a lot of problems we've had in our family for quite some time, behavioral mostly. We have a...
Hey.. I got some suggestions for your children.. if they get online.. theres a group called the NYA its for youth aged 9-29 living with hd.. there are so many...
Dear Kim, My goodness, what a tough spot to be in. To daily have to choose between being a good spouse and a good parent. I don't have any good advice, because...
I have a dear friend who was diagnosed about 4 years ago with Huntington's disease. I would love to find out as much as possible about the general prognosis of...
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