My sweet husband Allan was diagnosed in May of this year. We are just begining our hd journey. He is doing well and his mood is up-beat. How did you handle...
Rebecca. I feel for you. We just got back from the hospital last night. My husbands sister is in her second stage of Hd and was just diagnosed back in March. I...
Hello everyone My name Is Clint Fleming. My mother passed away a couple of monthes ago and she was only 45. The disease hit her hard. And she got it from Her...
Hi Clint, First my deepest sympathies for the loss of your mother. You seem like such a devoted son and brother. Just remember your love and you will get thru...
I'm a bit worried about my bro. We have late onset and he is only 35 at risk but this is what we're seeing. Mind you.....my father had bi-polar... Symtoms of...
My name is Winn, and my wife's is Harriet. She has HD, which was passed on to her from Violet (Reid) Krone, via Elizabeth (Krone) Degenhardt. Her mother,...
In a message dated 9/3/2003 7:29:57 AM Eastern Daylight Time, ... how did they first appear?? my Mother never showed any, she was always good natured and even...
With my sister in law they appeared with bad dicisions. Sudden and not thought out. When she moved back home all her known symtoms were disguised easily due to...
In a message dated 9/4/2003 9:53:18 AM Eastern Daylight Time, ... is this really a symptom of HD?? I had heard it was just some vitamin deficiency. never...
Hello Clint, I don't post here too often, but I just wanted to express my sympathy. That's so much to go through at your age. We just lost my mother-in-law 3...
The twitching and facial ticks could also be the side effects of certain meds they could be taking. becky Dian8711@... wrote:In a message dated 9/4/2003...
Dear Clint, I am so sorry for all that you are going through right now. All family's are messed up. HD family's even more so. Right now you need to take time...
Nope it is not. sometimes their head and necks pull forward giving a rounded back, but no lump on head. it could be aswollen lymph gland or something mor ...
Misty my heart broke when I read this. This was nearly my own family 2 years ago. Luckily Scott is not single and I was able to pull us out of the whole. We...
Hello everyone just wanted to let you all know I am sorry I have not wrote much the past week. I am having some house problems right now that is keeping me off...
HI ALL, ITS BEEN A WHILE SINCE I`VE POSTED.I`VE BEEN SO BUSY WORKING AT MY FIRST JOB THEN OF COURSE MY 2ND JOB OF TAKING CARE OF MY SISTER IN LAW WHO IS IN THE...
... MY ... DAYS ... ON ... SEND ... NURSE ... SUMMER..THANK ... WAS ... BUT ... THE ... LATE ... FEED ... COULD ... (NO ... DRUG ... IMPORTANT ... FOR ... BE ...
i don't know as you can determine your age of onset. I do know that my dad had a 40 and didn't develop symptoms (supposedly) until he was 54. I also know that...
Remember when looking at this link.. this is the average... so it may be a few years off for you... http://www.stanford.edu/group/hopes/causes/inherit/c7.html ...
... MY ... SEND ... NURSE ... WAS ... BUT ... THE ... LATE ... FEED ... DRUG ... IMPORTANT ... FOR ... BE ... me!!! HI , this is my first time posting. I have...
hi, my name is Tabitha the laast time i wrote i was going to take my mom tothe doctor to get tested, that was 1 week ago. And they told us the same day and it...
Dear Tara: Thank you very much for giving me that link it was extremley helpful. I had to read it a few times over to make sure I was understanding it...
Hi everyone it is me again. I got my testing done the repeat # is 43 and I got alot going on but I have a few other diseases too. It may make a difference. ...
... i've learned alot going to 2 canadian conferences and being an active part in the HDS in canada... i recently talked to someone who didnt know much about...
Hello everyone! Hope you are all doing good. been having some down days. mind isn't the best right now was having problems with insurance coverage and been ...
Hi Claudia, I'm sorry to hear you're kinda blue, hopefully it will pass soon. It is probably nice where you live this time of year, maybe a walk in the park...
My name is Alta. I have meet some of you already. My husband passed away with HD almost 2 yrs ago. I have 5 daughters. One at age 32 in the nursing with HD....
Hi Alta, I am sorry to hear your situation, unfortunatley I can relate. Sometimes it does feel hard to feel strong and know how to cope. My only suggestion is...
you keep going on, and living like hd is not there, least for the ones who do not know yet. you keep loving the ones and trying to help the best you can for...
