Hello Group... I am new member... My mother committed suicide. She had lived with HD for a long time. Now my siblings and I are facing this. I have 2 young...
Hi, I'm Dave and a new member. I've recently started dating a woman who has tested positive for HD. She is becoming very important to me so I decided I needed...
Hi Julie Sorry to hear about your mother,You are at Risk, have you had the Test Yet?or any of your Siblings?There is a lot of info and support out here on the...
Hi Julie and Dave, I would say welcome to the group, but noone really wants to be in this group. I wish it didn't need to exist. One of the best sources of...
hi all--i'm nancy--i'm 30 and tested positive hd---i wonder if any1 knows ways to meet others my age tested positive---and how does some1 meet a spouse when...
HI Nancy.. I to was 30 when I tested.. That was 2 years ago.. and i also was positive...I was already married with two kids... It is not fair by any means......
WOW! Thanks everyone who has replied back to me. Ron- Sorry, this stuff is new to me. Her CAG is 38. Paljorj- I'm not going to be scared off just because of...
Hi Nancy, My name is Betsy and I'm 27 and tested positive in January. I'm not symptomatic also. I think I'm sypmtom-seeking with everything I do wrong. We...
Hi Julie, It's nice to meet you! I'm 27 and have tested positive. I'm married with no children. My husband and I are looking into surrogacy, but it's so ...
Hi Betsy Nice to meet you!! My kids are 6 and 13. Both boys... Did your mom have the disease? My mom did ..Do you have any sibs?? Has anyone else gotten...
My name is Jodi and I'm in St. Louis, MO. Susie posted a message for me a while ago for people who are pos. with no symptoms yet, and I put a message in the...
Thanks Jodi! Actually I contacted Lori a couple months ago about participating in the study. I had my mind made up that I was going to go until I talked to ...
Hi everyone...it's Angelita ! I am 33 at at risk,not going to test,a sister who tested pos. for the gene and a brother who is not testing. We had been having...
hi angelita-read your story--way to familar--i'm 30--tested positive no symptoms--keep up the faith by the way--any1 in massachusetts around my age positive or...
Hi Julie, My Mom is only 54 and is in the end stages of hd. She is like skin and bones. My Dad gives her body builder shakes and she eats high calorie food,...
I have a lot of pent-up hostility toward my Mom because she was very violent when I was growing up. I feel like we have a better relationship now because...
Hi Betsy I remeber my mom was like that as well... But she died when i was 9. By then she had been in institutions.. and didn't see her alot... I know that was...
Dear Julie and Betsy, I know how u both feel my ather died from hd about 25 years ago. I'm still working on issues wfe had. My older brother is in a nursing...
... Hi Nancy...I would love to chat with you sometime...i know the time differance could work to my advantage...I work till 6 every evening and have weekends...
i do not know much about huntingtons other than a new friend sat in my office this morning and cried and cried about having to stop her mum doing the weekly...
I am also a new member. I married a man at risk for HD, so I learned a lot about the disease very quickly. We are extremely fortunate that he tested negative...
Hi Saffron, My name is Betsy. I'm 27 and tested positive. My Mom started her symptoms when she was about 35 years old. Your friend has a lot to deal with. I...
Thanks Ron! I'm trying my best to have a better attitude toward my Mom. I know my real Mom is in there somewhere. It just hurts so much that she can't ...
Hi Julie, How are you? My Dad is trying to keep my Mom at home for as long as possible. My Aunt (on my Dad's side) takes care of her while he's at work. I...
Hi Betsy How are you?? Have you thought about adoption??? Maybe wait a year and see where invitro is. I just read that they were able to remove alzheimers gene...
Thanks Julie! I'm good. How are you? We are still considering adoption. The only problem with it is that they ask to meet family members and check into your...
