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Messages 10750 - 10783 of 12417   Oldest  |  < Older  |  Newer >  |  Newest
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10750 sue_twin2 Offline Send Email Jan 2, 2010
12:10 am
... but there are still some people in the room at present. Thanks to Jen, Paula, Letitia, Matt, Lucy, Kayleigh, Jo, Teresa, Tina, Kath, Kerry, Donna, Steve,...
10751 T J
tmlarkin74 Online Now Send Email
Jan 2, 2010
6:13 pm
Is anyone in the group in the creatine study? I go in Monday to start and was wondering if there is anyone else already taking it   T. Is anyone in the group...
10752 Cathy Miller
miller6277 Offline Send Email
Jan 2, 2010
8:42 pm
I am not sure if this is the proper place to ask this... Does anyone have any "tricks" in helping people with HD wipe themselves after using the restroom? My...
10753 Mary Miluski
mary_stophd Offline Send Email
Jan 3, 2010
2:44 am
First, you should keep gloves in the house for infection control if you have to help her physically (sorry, that's the nurse in me).  And secondly, My brother...
10754 Mary Miluski
mary_stophd Offline Send Email
Jan 3, 2010
2:47 am
Happy New Year to you Teresa, and to all of you on here. ________________________________ From: T J <tmlarkin74@...> To:...
10755 T J
tmlarkin74 Online Now Send Email
Jan 3, 2010
11:09 am
thanks Mary where ya been hun?? ... From: Mary Miluski <mary_stophd@...> Subject: Re: [Huntingtons Disease Support Club] new year To:...
10756 Mary Miluski
mary_stophd Offline Send Email
Jan 3, 2010
7:46 pm
I've pretty much been wallowing in grief again. New Year's Day was  when we lost my sister.  I think what I needed was to be online and chatting with people...
10757 T J
tmlarkin74 Online Now Send Email
Jan 3, 2010
7:47 pm
well come back to chat we miss you alot!! ... From: Mary Miluski <mary_stophd@...> Subject: Re: [Huntingtons Disease Support Club] new year To:...
10758 Kelly
ksh26052002 Offline Send Email
Jan 4, 2010
12:20 am
Good Mary, always good to stay in touch with folks when the going is tough. Miss ya, prayers for you this time of the year. Love and hugs, Kelly ... From:...
10761 sue_twin2 Offline Send Email Jan 4, 2010
10:35 pm
... but there are still some people in the room at present. Thanks to Lynne, Jo, Mia, Liz, Carolanne, Pam, Teresa, Susan, Zena, Paula, Kayleigh, Matt, Mary,...
10762 Mary Miluski
mary_stophd Offline Send Email
Jan 5, 2010
12:26 am
Thanks so much Kelly.  I chatted today and it always helps ________________________________ From: Kelly <kellysue14@...> To:...
10763 Mary Miluski
mary_stophd Offline Send Email
Jan 5, 2010
12:30 am
I got there today but I was late.  Maybe Wed? ________________________________ From: T J <tmlarkin74@...> To:...
10764 Kelly
ksh26052002 Offline Send Email
Jan 5, 2010
12:37 am
Sorry I missed you. Teaching this year so it's the first week back in school after the break. Glad you got to chat. I get home later on Weds but will try...
10765 T J
tmlarkin74 Online Now Send Email
Jan 5, 2010
1:08 pm
hi all ! went yesterday for my blood work again for the drug trial study for creatine. I get to start the drug within the month!...
10766 Terri girl
lbrown845 Offline Send Email
Jan 5, 2010
1:14 pm
wonderful....  Terri girl ... From: T J <tmlarkin74@...> Subject: [Huntingtons Disease Support Club] drug trial To:...
10767 Scott Webber
escottw9 Offline Send Email
Jan 5, 2010
2:57 pm
So what’s the trial for ? From: huntingtonsdiseasesupportclub@yahoogroups.com [mailto:huntingtonsdiseasesupportclub@yahoogroups.com] On Behalf Of Terri girl ...
10768 jacey mukka
jacecat1_99 Offline Send Email
Jan 5, 2010
3:29 pm
That's great! I heard creatine does wonders for hd To: huntingtonsdiseasesupportclub@yahoogroups.com From: tmlarkin74@... Date: Tue, 5 Jan 2010 05:08:07...
10769 T J
tmlarkin74 Online Now Send Email
Jan 5, 2010
4:40 pm
To see if Creatine can help with the effects of HD, the study is for 3 years ... From: Scott Webber <scottw@...> Subject: RE: [Huntingtons Disease...
10770 Mary Miluski
mary_stophd Offline Send Email
Jan 6, 2010
2:22 am
Congrats T!  I take it myself to help with my fibromyalgia, esp if I'm going to the gym or to work at the food bank.  I'm really glad for you because I know...
10771 T J
tmlarkin74 Online Now Send Email
Jan 6, 2010
3:13 am
Thanks Mary, yes i really wanted in the study badly so glad i am back in it! take care hun and see ya in chat  ... From: Mary Miluski <mary_stophd@...>...
10773 AnneJenson
localfoodcoop Offline Send Email
Jan 6, 2010
5:27 pm
Hi all, I am new to this group. A member of my family, in her early 60s, has been obviously symptomatic for years (speech, movements, some mental impairment)....
10775 tracy@...
tracy_bumpus Offline Send Email
Jan 6, 2010
6:19 pm
My vote is to let it go and just manage the issues that come up such as driving, managing financials, etc. just as if you would if she was NOT symptomatic but...
10776 sue_twin2 Offline Send Email Jan 6, 2010
8:23 pm
.... but there are still several people in the room at present. Thanks to Matt, Lynne, Raymond, Destiny, Chloe, Zena, Teresa, Teri, Susan, Letitia, Angela,...
10777 E G
paljorj Offline Send Email
Jan 6, 2010
10:33 pm
I tend to agree with Tracy. One has to pick and chose battles. This one seems like a lot of arguement and hard feelings ending with nothing worthwhile gained....
10778 bonbetz Offline Send Email Jan 8, 2010
12:34 am
Hey Maria, Thanks for taking the time to share this information. I pray this my will be the year! Bonnie...
10779 bonbetz Offline Send Email Jan 8, 2010
12:35 am
I'm Bonnie from Orlando, FL. I have had Huntington's Disease since 2003. Even though it has cost me some issues, I feel blessed that I am able to fight this...
10780 bonbetz Offline Send Email Jan 8, 2010
12:35 am
... I just joined like you and I have Huntington's Disease. I can not drive now, so that is very frustrating not being able to drive no more! Arguing doing is...
10781 T J
tmlarkin74 Online Now Send Email
Jan 8, 2010
12:48 am
Welcome Bonnie to our group, i also have HD and am in the early stages. nice meeting you feel free to contact me anytime you want to...
10782 Mary Miluski
mary_stophd Offline Send Email
Jan 8, 2010
2:26 am
Hi Anne, If you are in the US, the physician has a legal responsibility to take her license if s/he sees a danger.However, that happened only AFTER my sister...
10783 Mary Miluski
mary_stophd Offline Send Email
Jan 8, 2010
2:32 am
Hi Bonnie, I am HD- but have dealt with having my mom suffer from it as well as my sister.  We're all here for you and you won't find a kinder group of people...
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