so recently i have found out my about this disease that my friend has and i wanted to join a group to find out more and talk to people that can help me with my...
I'm so sorry to hear about your news. I agree, HD sucks and on so many levels. No part is good. I just recently found this group also and just hearing and...
but there are still people in there at present. Thanks to Kath, Letitia, Matt, Pam, Mia, Jen, Lynne, Jacey, Kayleigh, Teresa, Susan, Ben, Patrick, Destiny,...
Jaceys got me pumped up! I will be good for 2 years just from her words. Every morning you get up you have to motivate your self with positive feelings or...
Thank you Lucy and Jacey for your answers. I live in Quebec city Canada. I feel like i'd rather have a terminal cancer right away so it could kill me very soon...
You're an amazing person jacey. Jonathan ... You're an amazing person jacey. Jonathan On Dec 3, 2009, at 9:00 PM, jacey mukka < jacecat_99@... > wrote:...
Hey, im sorry to hear about your diagnosis im 17 and was diagnosed about 4 years ago, my little sister, older sister, and dad are also sick... it sounds like...
Hi. I agree, HD sucks.I am glad that you are in this group. You will find the most awesome people here. Also, a lot of information and support. I have been a...
Hi, I'm 34 and I have Huntingdon's disease. It sucks. I just receive the diagnosis last month and I can't conceive that I have this illness. I'd like to cry...
but we look forward to chatting again on Friday. Thanks to Jen, Lynne, Kath, Matt, Mia, Jane, Teresa, Pam, Kayleigh, Letitia, and Cathy for your attendance...
I can never catch when the group is talking. How does that work? Sheryl in Renton, WA Servant to Jesus Christ! Wife to Matt:) Mom to Brandon/25, Heidi/24,...
As I understand it every person has 2 HD genes (most are normal) those with HD have at least one abnormal HD gene. CAG (cytosine-adenine-guanine) is how many...
welcome. I am @ risk. thinking daily as we all do that I'm having symptoms... currently caregiver for my sister age 49. glad to provide what ever support i...
Sorry to hear mom2x... of your husbuand's positiive result. I pray the insurance can still be purchased. Those that helped with the test should have made...
but there are still several people in the chat room. Thanks to Teresa, Sunshine, Lynne, Jen, Letitia, Kayleigh, Tanya, Briggsy, Matt, Susan, Mary, Michelle,...
Hi mom2ax2, I just joined this group myself, I will be 40 next mth and have had HD for 2 years, it was bad at first but with the doctors help and all kinds of...
what is the CAG count I read the # of teters is how its determined how soon systems show up ..Is that correct? Terri  Terri girl ... From: Terri girl...
yes thank you My dr told me there was only 1 place to get HD test and he would have to send it to calif I think he says I don`t have any systems so he...
We went to a genetic testing clinic and paid out of pocket as to not inform our doctor or our insurance company. The blood test was $330 Hope that helps....
teresa how do you get a test without your dr knowing ??  Terri girl ... From: mom2ax2 <tlsenart@...> Subject: Re: [Huntingtons Disease Support Club]...
Thank you Teresa. My husband just turned 30 this year and is already experiencing early symptoms (so I was kind shocked his CAG was only 43). I'm not sure what...
So sorry about your husband. How old is he now? The good news is they are making progress all the time on meds for hd. Yes, get all the insurance you can...
hi, Â I am so sorry about your husbands results. I am 53 and in the early stages of HD. I take it you had the test "off the books" so that insurance doesn't...
My husband tested positive. :( His CAG is 43. He wasn't shocked and seems ok but I'm not sure how much of that is a front. I've been searching online all...
but there are still several people in there at present. Thanks to Lynne, Matt, Jen, Anne, Teresa, Lauren, Sunshine, Kayleigh, Jacey, Kath, and Lulu for your...
but there are still several people in the room at present. Thanks to Gillian, Teresa, Zena, Jane, Lynne, Jen, Kayleigh, Lauren, Jacey, Susan, Alison, Matt, and...
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