Heather Alimossy from Oregon and Ashlee Duffy from the UK, both 20 year old's who tested positive for HD, both set off to accomplish major HD awareness events...
I'm afraid, but should be avilable on Wednesday as usual. Please go ahead and use the chat room <http://pub43.bravenet.com/chat/show.php/3651366053> anyway. ...
Hi, its Mary from MO. My husband has HD & he has a child from a previous relationship. We go to court next week for his son. When (if) we get him my...
Mary i would doubt if you will find a reputable doctor to test a child that young. I agree he is way to young. Plus, even finding the gene does not tell us...
You would only be able to test a child that young if the child was showing signs of JHD. ... From: E G <orginaltigger@...> Subject: RE: [Huntingtons...
my ex hubby was told they cant legal test a child that does not have symptoms at all. Â otherwise everyone has to be 18 before they can get tested. ( i think...
but there are still quite a few people in there at present. Thanks to Matt, Hugh, Cat, Rick, Teresa, Mary, Kayleigh, Kath, Raymond, Jeanette, Liz, Onions, and...
Twin Tiers Huntington's Disease Support Group will be starting February 12, 2009. The meeting will be held at the Robert Packer Hospital (1 Guthrie Square...
Educate yourself well about HD before making this decision. If your husband's judgment is impaired buy his health, maybe he should not be the deciding vote on...
and am heading for bed. Thanks to Laura, Teresa, Matt, Kayleigh, Mary, Lauren, Jaq, and Raymond for their attendance today. Wishing everyone the best weekend...
Thank you ALL for your comments & suggestions on my "how young is too young" ! They are are very insightfull & I am getting support in my oppinion by my...
Mary, I am sure others will argue this point. My father and older brother died from HD and my sister has it now. Brother and sister were later showing signs...
No, your co-workers are incorrect based on the reliable information I have received. May be your co-workers or even anyone else including myself are not the...
You are never too young to start showing symptoms, my mother was 30 when she first started showing and now she is 41 and is in the last stages of hd. just...
Jacey Mukka, the NYA's Video Director Extraordinaire, found a very cool video on YouTube discovering something new:: Video - World Rare Disease Day is being...
We are currently struggling w/ the idea of a G tube for our 12 yr old son Ty. How do you know when it is time for one? He is having trouble chewing - it is...
... old ... trouble ... teeth. ... he ... one ... not ... His ... ( ... struggle ... variety. ... it ... of ... My heart goes out to you I am watching my...
... too young" ! They are are very insightfull & I am getting support in my oppinion by my mother inlaw. (husbands fathers side has HD) We have asked...
... too young" ! They are are very insightfull & I am getting support in my oppinion by my mother inlaw. (husbands fathers side has HD) We have asked...
You can experiment with many of the tastes through the straw for him. I could puree even the pizza taste, we had an argument about popcorn and she was willing...
The chat has now finished for today and there's no-one in the room. Thanks to Teresa, Mary, Hugh, Lauren, and Kayleigh for their attendance today. I won't be...
Am sure many of you may have seen yesterday's business news on the sale of Ovation Pharmaceuticals, Inc. to H. Lundbeck A/S (Lundbeck) of Denmark. Ovation is...
Below is a letter from HDSA's National Youth Alliance 2009 Silent Auction Chairperson, Staci Nicholas requesting NYA members, HD families, HDSA Chapters and...
but there are still several people in there at present. Thanks to Hugh, Kayleigh, Onions, Liz, Teresa, Matt, Mary, and Debbie for their attendance today. I...
mary, every case is different for sure. the symptoms are such a long list its just crazy. i really think that the symptoms are so different in each hd person...
Hi, I am just joining the group. My wife is at risk having lost her father, brother and a sister to HD. She has been active in HD support groups for a long...
Welcome Jack, sounds like your on the right track. It's late for me on the east coast of the USA after midnight so, I will welcome you for now but I hope that...
Hi Jack and welcome to the Huntington's Disease Support Club (HDSC). I am sorry to hear your wife is at risk and has lost so many of her family to HD. In...
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