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Re: [Huntingtons Disease Support Club] (unknown)   Message List  
Reply | Forward Message #3596 of 10728 |
Re: [Huntingtons Disease Support Club] (unknown)

Connie,

How nice of you. I think reaching out to find her a companion is a fabulous
idea. I'm sure she's very lovely! Good luck!


I wanted to ask a question on a different subject. My Aunt is in the beginning
stages of HD and she has been experiencing in her previous home obsessions with
smelling things (gas, burning smells etc) and we HOPED when they moved into
their new home it would disappear

Well she's been there about 3 weeks and yesterday she called the apt manager to
come down because she smelled a "burning smell". She's for the most part
rational however her old home caused her massive anxiety (She thought the house
was caving in because of settlement issues, and she thought just about every
light fixture was a fire hazard??) but the house was old and I passed off the
lighting as a possabilitly and just tried to be rational about the foundation
issues. (There was nothing wrong) She said she felt the house move and the
floor bounced when she walked. (all not happening) Well the house is sold and
their in a nice apt so I've been just waiting to see if the craziness subsides.

Is this something that often happens with the brain/senses in a HD pos
person????????
----- Original Message -----
From: Connie Jenkinson<mailto:conniejenkinson@...>
To:
huntingtonsdiseasesupportclub@yahoogroups.com<mailto:huntingtonsdiseasesupportcl\
ub@yahoogroups.com>
Sent: Thursday, December 09, 2004 10:52 AM
Subject: [Huntingtons Disease Support Club] (unknown)



12/09/04
Hi my name is Connie, and my 21 year old Daughter has Huntingtons Disease. She
was diagonised at the age of 19, and her Father passed away in March 2003 at the
age of 43 from this sickness.
This sickness is very hard to think that anyone would have to deal with this
in life, but we know its reality. My Daughter wanted to go to College, someday
find the right person and maybe get married and have children, but her whole
life took on a change on August 9th, 2002.
I've sent and received emails from alot of you before for support and I think
you all have been wonderful, and my heart and prayers go to each of you nightly.
But, I'm looking for something else right now.
I was wondering if there is any young gentlemen about her age and dealing with
the same sickness that may want to email each other and build a friendship.
Christina has expressed to me more then once that she wishes there was someone
like her about the same age, that she could talk to, maybe go to the show with
or dinner and maybe build a relationship.
Christina may have Huntingtons and she thinks no one will ever want to be
involved in her life if they know she is sick, but if they know what kind of a
person she really is, they would be happy to know her and be a part of her life.
We live in Michigan.
Christina will be 22 in April, has Faith and goes to Church, doesn't smoke,
drink or do drugs, likes to read, loves children, playing bingo, going to the
show, shopping, puzzles and just alot of other normal things. She has a heart
full of love for people and is always thinking of people and always sees good in
everyone.
If there is anyone that would like to respond to this email, I would love to
hear from you. My Daughter doesn't know that I am doing this, I'm just trying to
help her know that she's not alone.
Thank you and GOD bless you all!
Happy Holiday!
My email address is:
conniejenkinson@...<mailto:conniejenkinson@...>
Connie


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Thu Dec 9, 2004 4:18 pm

thehynesfamily
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Forward
Message #3596 of 10728 |
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Hi Julie Sorry to hear about your mother,You are at Risk, have you had the Test Yet?or any of your Siblings?There is a lot of info and support out here on the...
Ronndi
ronandi
Offline Send Email
May 7, 2002
12:02 am

im sorry herman, sounds like a very tough time for you, is there any chance her meds need to be changed ? good luck and i hope she feels better soon ,...
bean869@...
attitudeshair
Offline Send Email
Aug 28, 2002
9:14 pm

That is not healthy for you child no matter if your mom has a disease or not. Your daughter is not going to understand what is going on. Sometimes no matter...
Roxanne Hutt
blondroxanne
Offline Send Email
Jul 4, 2003
8:54 pm

Hi Katrina, I agree with Roxanne that your daughter shouldn't continue to witness these incidents. Kids are resilient and bounce back from just about anything,...
Cristy
cure4hd
Offline Send Email
Jul 4, 2003
9:22 pm

Connie, How nice of you. I think reaching out to find her a companion is a fabulous idea. I'm sure she's very lovely! Good luck! I wanted to ask a question...
April Hynes
thehynesfamily
Offline Send Email
Dec 9, 2004
4:18 pm

Hi April thank you for the email. I do believe that their smells get mixed up becuase my Daughter at one point could smell things that no one else could. But,...
Connie Jenkinson
conniejenkinson
Offline Send Email
Dec 9, 2004
7:42 pm

Tell me if you have any luck finding her a male companion. I am in the same situation as your daughter. I am 22 and was diagnosed in March. I lost my mother...
Allison K.
alamoo00
Offline Send Email
Dec 9, 2004
8:25 pm

Hi Allison, My name is Colleen, i just turned 27 and live in Colorado. I am at risk but have decided not to get tested. I would be more then happy to be your...
Colleen
carebear22_00
Offline Send Email
Dec 10, 2004
4:50 pm

Hey there Colleen, this is nursecharlie37 and I got your emial to allison so maby she didn't. just to let yo know hon its ok but maybe it was error to me huh.?...
me
nursecharlie37
Offline Send Email
Dec 10, 2004
5:04 pm

just testing-i think this site might be down me <nursecharlie37@...> wrote:Hey there Colleen, this is nursecharlie37 and I got your emial to allison so...
Colleen
carebear22_00
Offline Send Email
Dec 10, 2004
8:41 pm

Hello to all HD friends and family. I just wanted to add another HD angel to our list. My daughter, Beth Ann, has finally won her battle with this horrible...
mariasprat@...
mariasprat
Offline Send Email
Dec 9, 2004
7:40 pm

My heart and prayers go out to you and your family in the loss of your young daughter. My daughter is 21 and was diagonised at 19. Her father passed away at 43...
Connie Jenkinson
conniejenkinson
Offline Send Email
Dec 9, 2004
7:49 pm

Maria / Connie: My heart goes out to both of you. My daughter is 25, although she wasn't diagnosed with it until she was 23 she was in 'mid stage' when we...
Kelly Hendrix
ksh26052002
Offline Send Email
Dec 9, 2004
9:36 pm

((((((((((Maria)))))))))) This disease is so horrible, it slowly steals the people we love. Beth Ann is dancing before her Lord now. Praying for you. Tom ... ...
Tom Lister
airtroopertom
Offline Send Email
Dec 10, 2004
1:04 am

Hello I am new to this as well, and would like to talk to you and any one else who would like to talk. thank you Cathy...
tucsoncathy@...
cathyjavi
Offline Send Email
Jun 17, 2005
2:42 pm

Cathy Welcome to our humble group god pless you RPB ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the...
rpb22000@...
rpb22000
Offline Send Email
Jun 22, 2005
10:45 pm

Dear Barb, Thank you so much for taking the time to respond. Your letter has helped soooo much. What you have written has answered years of questions! My mom...
Cathy Miller
miller6277
Offline Send Email
Jul 12, 2006
1:40 pm
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