Coleen,
Hi! Contact the Huntington Disease Society of
America, they usually have counselors that can come to
nursing homes and educate the workers, sometimes they
have a list of nursing homes with experience in HD.
The main office is in New york and they can give you a
number for Colorado. Just type in HDSA or the whole
thing under search. I am so sorry this is so hard, HD
seems to be that way, makes every aspect of life a
struggle. I will keep you in my thoughts.
Ginnie
--- carebear22_00 <carebear22_00@...> wrote:

> Hey everyone-I have not been on here for a very long
> time. Right now
> I am trying to find a nursing home for my mom. I
> live in Denver and i
> would think there would be alot of options here. I
> am not finding
> very much that accepts medicare/medicaid and that is
> a decent place.
> I dont want to put my mom somewhere dirty or gross.
> has anyone else
> gone through this as well?
> I have been looking for about a month and i cant
> believe how
> difficult this is. All the phone calls, driving
> around and hours of
> research online.
> Alot of people have not even heard of this disease
> and if they have
> they have never had the expierence with a patient. I
> feel i have
> exhausted all my options. I dont know what to do.
> Where do people
> with HD live?
>
> Colleen
>
>




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