I just found your group today. I am 28 and from Finland. I am sorry to
say, I am not with my name, because my husband doesnt want me to talk
about HD to anyone. He is at risk and his mom and uncle and grandma
have died of HD. So, he is actually the oldest member on his family on
his moms side now. Creepy. I knew his mom for a few years, so I have
seen the disease myself.

We have a toddler, and are planning to have another child soon. That
is the main reason I am writing now. (Though I think I need to talk
about this to someone regardles of the babyproject.) We were
originally about to adopt. Not only because of HD, but for other
reasons. Like for there being so many people on the planet and also
many babies without parents. But in Finland there arent many kids
given for adoption. Then we thought about international adoption. But
it turned out too expensive at the moment, about one years salery for
me. Maybe later if we get our home repaired and save some money, but
not right now. So, we decided to take the risk and live through
possible consequinces. (sorry, dunno how that is spelled correctly =)
Our child is healthy, but obviously at risk like his father.

So, now we are with the same questions again. Should we have another
child, knowing he or she has about 50 percent chance of getting HD. I
am not asking you to decide for us, naturally, just want to hear other
points of views.

We are not religious. But I am not OK with the idea of first getting
pregnant and then doing the test for the baby inside me, and then
aborting if it has "bad" genes. So that is not an option for me.
Othervise I am open for anything. Hoping there will be a cure and
perhaps thinking life is worth living with or without HD. But I am not
in a good place to say that, as I am at almost zero risk myself. Just
watching people die around me.

Wife and a mother from Finland