Hello Tara my name is Rita and my daughter (10) is at risk for HD Her
grandfather past away last year from the disease and her two younger
step-sisters (8) and (6) have been diagnosed with HD from my understanding. This
runs on her fathers side so I am having to learn of this and how to deal with it
on my own without any support or help other than my family that has no idea what
so ever about HD. Since unfortunately I may have to deal with this one day also.
There is a lot more to the sadness then just the disease in the family, with my
daughter right now so i wont get into details. I just wanted to Thank You for
the information to http://get-me.to/NYA me and my daughter will check it out I
really appreciate it. Me and her will be on line concerning the disease
together.

Rita

Tara Bintliff <tara@...> wrote:
Hey..
I got some suggestions for your children.. if they get online.. theres a
group called the NYA its for youth aged 9-29 living with hd.. there are
so many people that they can talk to....

http://get-me.to/NYA

im 24 and at risk..

my grandmother has hd.. and is very very moody.. we don't get along at
all.... thankfully I don't live with her... but I still have to deal
with her... my mom also tested positive for hd.

Feel free to contact me anytime
My email is tara@...
And my yahoo messenger is tara1644

Regards
Tara
www.taraward.com


-----Original Message-----
From: lionsntigers02 [mailto:lionsntigers02@...]
Sent: Thursday, June 03, 2004 12:09 AM
To: huntingtonsdiseasesupportclub@yahoogroups.com
Subject: [Huntingtons Disease Support Club] First Time Communicating

My wife was diagnosed with HD last October. This diagnosis explains a
lot of problems we've had in our family for quite some time,
behavioral mostly. We have a 16 yr son, 14 yr daughter, and a 5 yr
daughter. There isn't a day goes by when my wife and son or myself
have arguments about trivial things to things that are very important
to my teenage kids. My wife is very controlling, dictatorial, and
unbending. We've all been in counseling to help iron out problems,
which has helped, but it is so laborious. My 14 yr daughter lived with
her grandparents this past school year because of the severity of
problems between her and her mom. The move was initially because we
thought it was our daughter problem, now we know different. She will
be returning home for the summer, and wants to, with the agreement
that she can retreat to grandmas if things get really bad.

Sorry about this long intro. I'm a teacher and am not going to work
this summer cause I guess I'm expecting the worst. I know thats bad,
but probably realistic.

I walk a fine line, advocating for my kids and supporting my wife's
view when it is rational and fair. The latter doesn't happen very
often. I want to with all my heart dignify my wife's views and
parental rights, but sometimes I just can't. I have to advocate for my
children!

Can anyone give me some advice for remaining sane myself, advocating
for my children, and dignifying my wife?

Kim





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