Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Tuesday July 7, 2009 All Day (This event...
huntingtonsatrisk@yah...
Jul 6, 2009 4:56 am
6946
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Tuesday July 7, 2009 All Day (This event...
huntingtonsatrisk@yah...
Jul 7, 2009 4:26 am
6947
This is good news for all HD families from Nevada and surrounding states without HDSA Centers of Excellence! If I recall, in a February announcement I read,...
The below was posted on Hunt-Dis. You can check out Dr. Ready here: http://people.umass.edu/rer/. If you live in the US and would like to participate in this...
For those interested, HDSA has published three recent articles written by Marsha Miller on HD research: A Breakthrough in generating stem cells from adult...
-- I was just about ready to write a post and tell everyone who I am and my my fears are, when I came acrossed this post and the other post that responed to...
Mochwooley, I am in the process of finding a counselor to help me cope with the "impending Doom" maybe you should consider it too. And getting your family...
ok I know everyone goes through this different but what is some of the most common things I should expect my mom to go through. I've done alot of reading on it...
My mom experienced alot of mood swings. They call it raging. Where for an hour or so, she just exploded in anger. She said some very hurtful things during...
Thank you so much for the tips. Everything your saying about your mom sounds alot like my mom but she hasn't had the rage (or anger) yet. She has gotten very...
HI Everyone, I am writing to see if anyone feels like there will never be a cure. I am so overwhelmed right now. My sister who is 40, was diagnosed last year...
Neisha, I am so sorry that you are going through a hard time. I know how those go. And yes, sometimes I dont feel like "they" will be able to do anything for...
hi sorry i missed you i thought you was online but it was your husband he said he would let you know i was on if you guys need any one to talk to i will chat...
yeap my husband let told me know you were on when I got home. He said you were really nice. I'm going away this weekend but hopfully I'll catch you online when...
Goodmorning, I know at times this all can be so overwhelming. I am 40 and HD+, My Grandmother, mother and so far one of my Aunts have this diease. My mother is...
If you're part of the hunt-dis folding team, you can check your stats here: http://fah-web.stanford.edu/teamstats/team36167.html. We are now 97th in the...
hi michelle hope you have a good weekend look foward to chatting ... From: michelle wooley <michwooley@...> Subject: Re: [huntington's at risk] Re:...
hello all ~ my name is elise and i am a single 29 year old female. i just found out in march of this year that my mother has huntington's (we both found out)....
omg, i really didn't know about the mood swings, guess u learn something new everyday. but i do go to a support group in rockland massachusetts. if anyone is...
Hi Elise, I am 51 years old and was just tested last May. Due to the fact there is no cure, I never opted to test before this. My daughter came to me (she is...
Hi Elise, I am so sorry to hear about your mom. It is hard. To answer your question I have to tell a little of my story, so I will try my best to keep the "Me"...
Hi Elise. My situation is not the same as yours. However, I do understand your need to know if you carry the gene for HD. My husband just got tested and we are...
Hi Elise... sorry you are here, but glad to meet you. I'm Heather and my husband has Huntington's. He found out when he was in the army that his dad and...
thank you so much for sharing ur story with me. as for how i will take the news, it'll just be one day at a time. my mother was just diagnosed and progressing...
Just wanted to make sure you guys see this. Kelly on Hunt-Dis wrote in to the show "The Doctors" on CBS and they're going to do a show about HD. There is a...
Thanks to Dr. Finkbeiner's efforts, Huntington's Disease is now a "featured article" on Wikipedia!!!! Let's show him our appreciation..........ask all of your...