Thanks Scott for your advice, its good to see your side as you choose not to get tested, and Im glad you said you had children regardless, because honestly...
Thanks Melanie, Its true it is such a hard thing to do! I have a gut feeling that I do have it, thats why I think I am trying to avoid getting it, but like you...
Thanks Heather, Im sorry about your husband. I didnt know there was that test for the embryos, so that is definatley good to know! When I first found out about...
Hey..I have HD. I got tested. I did not think otherwise. There is lots of hope in the world. There is tons of research going on for cures. There is more...
WOWOW! Through a friend of mine, I'm going to be interviewed on WJJG-AM radio about our Walk TODAY around 2:20 P.M. Central Daylight Time. It's a small local...
The Huntington's Disease Drug Works website has just published and excellent article on stem cell research. You can go to the HDDW website to print it out for...
But I read the posts every day..not much time to be active in discussions, etc but you all are in my thoughts!..I sent an email to Oprah Winfrey Show to please...
I guess if we could get as many people as we can to show an interest in the topic..MAYBE we can get someone to do a show..spread the word to email these...
Hi my name is Krista and my husband (Todd, 36) tested positive for the HD gene, we just got the results on April 10. I kinda suspected this was the case as he...
 Hi Krista.  Sorry to hear that about your husband. My mom has HD and her father gave it to her. We have a STRONG family history too on his side. I think...
Hey..I also got tested and have the gene. You meet the neurologist for as an intial visit. They will give you meds. Make whatever time periods they want you to...
Thank you for the information!! He is seeing a neurologist at Ohio State, we live in Springfield Ohio.  I checked the dr out on the website and she...
wearehd.org    like myspace for people with hd very informative AMANDA KAY ... From: todd neely <toddmneely@...> Subject: Re: [huntington's at risk]...
Hi Krista! Im glad to meet you and sorry at the same time. My husband tested positive a few years ago at age 25. Having a good neurologist that understands HD...
Just wanted to let everyone know that mom (pHD) passed away yesterday morning (Thursday, April 23) at 5:25 am. I know some of you had no idea she was even in...
I'm so sorry to hear that. :( Hugs and prayers to you and your family. Michelle ____________________________________________________________ Find success and...
EVERYONE, Thank you so very much to everyone for all your kind words, thoughts, and prayers. It means a great deal to me. And yes I have been receiving a...
New leglisation to keep an eye out on! You can download the attachments mentioned below from this link. The GREAT thing is the proposed Cures Acceleration...
The below message was posted on the HDSA National Youth Alliance Yahoo message board by the NYA Chapter/Executive Committee's President. The NYA organization...
I was looking for some information on the convention and lo and behold......the tentative HDSA 2009 Convention Agenda is now available on line here:...
This message is for anyone who will be arriving in Phoenix June 3rd for NYA Day. I was just asked why the NYA Day scheduled events for June 4th is not...
... From: "NAMI E-news" <enews@...> To: "Michelle Routhieaux" <whatnomuffins@...> Subject: The President's Economic Recovery and Stimulus Program and...
Check this out. www.hdsa.org/mayawareness 13 and Dr. Taub from House are doing a print ad and PSA for HD. Yay! It's about time! Michelle ... From: "HDSA"...
I'm not trying to push something political. I just think this might be some good info on the possible universal health care stuff going on in Congress right...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal michelle lehosit Tuesday May 12, 2009 All Day (This event...
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