This is such an excellent response, I copied the article into an MSWord document for sharing with HD families, at support groups, etc. for those without a...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Papaws Birthday Monday March 9, 2009 All Day (This event...
huntingtonsatrisk@yah...
Mar 8, 2009 4:56 am
6862
Just a reminder that if you are planning on coming to the Illinois State mini-convention, it's FREE!!! IF you register before March 10, 2009. It's worth the...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Papaws Birthday Monday March 9, 2009 All Day (This event...
huntingtonsatrisk@yah...
Mar 9, 2009 3:55 am
6864
I'm on digest so I dont' know if anyone has shared this. How these wonderful ladies have the endurance to do this for HD awareness year after year amazes me,...
To All; Team HOPE will be conducting walks throughout the country this fall in an effort to raise awareness and money for HD. If you'd like to get more...
gwiley18 writes: If you are interested in starting a walk in a different city let us know. You can also Facebook us at Walk4hd. ... If you'd like to...
Hi, my name is Helen. My mother has just been diagnosed with Huntington's. I am nearly 40 with two children. I am nowing living with the stress of trying to...
Hi my dad has HD and its really upsetting to watch him struggle. I am 24 and my sister is 15 so we are both at risk. I have choosen not to get the test for the...
My husband is 29 and has tested positive.? He chose to get tested a few years ago when his dad tested positive. He tested almost immediately because he...
Hi HEllen, I also did not have a clue. Single Parent and now grandparent. I recently tested positive, I am 50 and raising a special needs child and 3 adult...
Yesterday the Illinois Chapter of HDSA presented it's annual state mini-convention, which was a huge success. The reason I'm writing is to let you all know...
Hi Helen,  I'm sorry to hear that your Mom has been diagnosed and now you're facing the decision as to whether or not to test. It's a tough decision and...
It's a tough decision as to whether to test or not and it's very individualized as well. I struggled for years (about 10 years) as to whether I should test...
Emma: A reply from the "other side". I'm 46 now and was right about your age when I lost my own father about 3 or 4 years after his diagnosis. I, too...
First of all, regarding loss of memory and clumsiness. Welcome to "almost 40" ;).. I already responded to emma, but since your closer in age and current life...
CAG is how many times the Huntingtons gene repeats on your DNA. "Normal' people have a much much lower repeat. My husband, who is positive (CAG 42), says that...
 ...  Hey.. I have HD. My Mom died when she was your age. I have early onset. My family has never lived in denial like you want. It is a good pace. No...
... Hey.. I have HD. My Mom died when she was your age. I have early onset. My family has never lived in denial like you want. It is a good pace. No Denial-...
Scott,  Thank you for a wonderful response from someone who has decided not to test and hasn't regretted that decision. It is such a personal decision and...
Scott,  Thank you for a wonderful response from someone who has decided not to test and hasn't regretted that decision. It is such a personal decision and...
Thank you to everybody who responded to my last message. I think the biggest thing for me is knowing there are people out there who understand. When I last...
Vent any time Helen! As for friends outside of HD, you are right on. The ones I've confided in can't believe I haven't tested, but don't judge my decision,...
Hello Helen, Sorry I did not respond sooner I have been away. What I am going to say is just my personal thoughts and expriences. I will be 40 in May and have...
Thanks Scott for your advice, its good to see your side as you choose not to get tested, and Im glad you said you had children regardless, because honestly...
Thanks Melanie, Its true it is such a hard thing to do! I have a gut feeling that I do have it, thats why I think I am trying to avoid getting it, but like you...
Thanks Heather, Im sorry about your husband. I didnt know there was that test for the embryos, so that is definatley good to know! When I first found out about...
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