... you find a doctor that is familiar with HD. I know my primary doctor is really useless and I really don't even know how to began looking for one. Thanks, ...
Where do you live? I'd check the HD website to see if there are any doctors in your area and/or see if anyone here knows of a doctor in your area. It is...
The Illinois Chapter of HDSA will be presenting its 11th Annual State Mini-Convention on Saturday, March 21, 2009, at the Hilton Hotel in Northbrook, Illinois....
For some people, the link i gave for registration for the Illinois State Mini-Convention may not work. If that happens to you, go to http://www.hdsa-il.org...
Heather Alimossy from Oregon and Ashlee Duffy from the UK, both 20 year old's who tested positive for HD, both set off to accomplish major HD awareness events...
Amanda, Where do you live? The network here is so huge, someone may be close by geographically and help you "cut to the chase" so to speak. New Jersey has...
... notice ... fast. ... Hi Amanda..if your area is anything like mine you can call your local hospital and they should have a physician's reference guide and...
Amanda have you been on the HDSA website to check out the Centers of Excellence to see if there is one near you? If there isn't, check out the Social Workers,...
Jacey Mukka, the NYA's Video Director Extraordinaire, found a very cool video on YouTube discovering something new:: Video - World Rare Disease Day is being...
This morning's Chicago Tribune on-line had an interesting story about the quality of care in Chicago area nursing homes, using the government's 5-star system...
Hello everyone I joined the group back in January and have been really busy so I have been away for a little bit, I was the one asking about testing and...
... <srssmith1969@...> wrote: Hey..I have HD too. I was Lucky. I knew when I was 12 about HD. My family never lived in denial. The gene is domaniate and will...
Hey I have another question about cag repeats, I am going a genetic counselor soon and I have read about cag but I am still confused I have a 37 and 28 cag...
Hello Shannon, My name is Terry, and I am 51 tested positive last year. I have 3 adult children one of whome is serving in afganistan. I have 5 grands and...
I found this website this morning that is really great for looking up info on mental health diagnoses by the codes in the DSM and getting info on them and...
I'm sorry you tested + for the gene, although it sounds like you are ready to go on with your life positively. Generally speaking, you will eventually show...
Thank you for the feedback, I do have a strong faith in God and I know he has a plan for me I just pray her prolongs my symptoms to at least watch my girls...
Heather thanks for the postive feedback,,lol I have a stong faith in God and know he will take care of me. I do appreciate everyones positive feedback and...
Thank you so much yes please put me on your prayer list, I know God has a plan for me and he will take care of me. I have to keep my sight and grip on him no...
Am sure many of you may have seen yesterday's business news on the sale of Ovation Pharmaceuticals, Inc. to H. Lundbeck A/S (Lundbeck) of Denmark. Ovation is...
Below is a letter from HDSA's National Youth Alliance 2009 Silent Auction Chairperson, Staci Nicholas requesting NYA members, HD families, HDSA Chapters and...
Hi, This is a message from David Granirer and Stand Up for Mental Health. It's an organization that teaches stand-up comedy to people with mental illness as a...
sorry haven't been on this site in a long time so didn't see your question...here is info on MRSA from Mayo Clinic: MRSA infection is caused by Staphylococcus...
Hi Gina you are right this web page does have a good explanation about the CAG repeat however beaware that the table that matches the age to the CAG repeat...
For those of you in Illinois and the greater Chicagoland area (Milwaukee to Gary), you are cordially invited to the Illinois Chapter of HDSA's 11th Annual...
This is such an excellent response, I copied the article into an MSWord document for sharing with HD families, at support groups, etc. for those without a...
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