I am at Risk for huntingtons I found out that my Aunt tested posted for it and I am most certain my mother has it. her mother and grandmother both had it. My...
Yes, unfortunately you can be denied life insurance and other types of insurance if you test positive for HD prior to having the insurance before testing. ...
Yes, there is much discrimination in life and health insurance. I tested anonymously. They did just pass legislation making it illegal to discriminate in...
Hey..I am Heather... I have HD. You have to get insurance before you get tested. After the result you can't get it anymore. I run a postive HD site. It has...
Hey.. There is a way we can have kids that don't get HD. My husband and I are going to. HD Free With PGD! Trevor and I want to do this. Planning an HD-free...
Just get the hope. There are so many breakthoughs now. More trials. More cures. More hope. Think of hope when you see your brother. Mine has it too. He is more...
Yes, unfortunately paying out of pocket is THE way to go. However, if you test negative, you can go back and have your insurance billed for it. ... From:...
I had a very good friend tell me something right before I got my results that she had said before. It really helped. She said it's been the same blood flowing...
thanks for all of the feedback to answer some of your questions I will be 40 this year and I have 3 daughters ages 4,3,2. I am familar witht his diease and...
Hi there. I just wanted to let you know that you are not in the boat alone. My mother's family is riddled with HD and she died before getting tested. We wanted...
My ex and I had two kids who are now 12 and 15. While I was pregnant with the first, his mother started having neurological symptoms. She was eventually...
Hi Heather yes PGD has been around for a while now but you also have to keep in mind that it is very expensive and it might not take the first time it can take...
Hey Ronni how are you I see your brother is still going and his symptoms are getting to you. Yeah it takes a lot to make a caregiver and to sit back and watch...
Shannon, I know I am probably alone in this thought but there is never a right time to talk to kids about HD, I told both of mine on was 13 and the other was...
Hi Shannon,  Sorry to hear that your family has been in denial for so many years about the disease. My grandmother lived with me when I was growing up, so...
Hi Shannon, I agree with Susie about there not ever being a "right" time to tell a child. They present many opportunities though. Children ask questions. The...
DO NOT PRESSURE YOUR GIRLS INTO TESTING!!!! PLEASE! I read your whole email and I understand that you are scared and frustrated and planning, but planning...
I am not going to pressure them. What I write here about my frustration, and what I say to them are two different things. I fully understand that they may...
I'm curious. What does DD stand for? Michelle -- phillymatris <no_reply@yahoogroups.com> wrote: I am not going to pressure them. What I write here about my ...
Thanks to Marsha Miller the HDL is reporting on two recent studies in HD! Weight loss in HD http://www.hdlighthouse.org/showUpdate.php?p_articleNumber=609 HD...
Sorry - didn't mean to be cryptic. "DD" stands for Darling Daughter. On a lot of online lists, people refer to their family members as DH for Dear Husband,...
I was 15 when I found out about my mother. Back then, the testing involved blood from affected and unaffected family members (before the gene was found). I...
I was 15 when I found out about my mother. Back then, the testing involved blood from affected and unaffected family members (before the gene was found). I...
Forgive me if I've sent this already........I've sent out so much stuff today am starting forget what I sent and who I sent it to! I know I sent something...
my mom has Huntington's disease but has yet to have the blood test done to test for the gene. Her father had it and when she began to show symptoms of it; we...
She doesn't have to have the gene test to get treatment, especially if it's just the psychiatric part you want to treat. There is a term for the state of mind...
First, the bad news: if your Mom does have HD (by your account she has become symptomatic) there is nothing you can do to force her or convince her to take...
What would change for you if she got the test? You already know she has HD, and so does she. I agree with Michelle - just encourage her to start getting...
Dear Friends, Many of you know I lost my late wife, Paula, to Huntington's Disease, a devastating neuro-degenerative disease of the brain for which there's no ...
hello...i am reaching out. i have never spoke to anyone besides my sister, around my age, that is at risk. i am 26 years old- trying to start my life....but i...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
