Below is an article from the Huntington's Disease Drug Works web site:- The Huntington's community has been without treatment for so long that we don't let...
My brother called me earlier. He was tested and it was positive. He doesn't know his count yet. He is going in for another appt. in one week. I don't think it...
Hey... I have HD myself. My younger brother Gary got it around the same time as me. It hurts at first. Takes a bit to sink in. Don't be too worried. Hope is on...
Hi Kelly, Facts are facts. Perhaps your brother felt he already knew the answer? I do not know you. I do know the feeling of being tested, I was tested this...
The HDSA has published the below article by Dr. LaVonne Goodman which provides full coverage of the recent Huntington Disease Clinical Research & Symposium...
Thank You! Hey guys. Thanks for all the support. He is now not talking to anyone. He has moved back in with my dad and his stupid girlfriend (my dad's not my...
Try posting this on the NYA list too - HDSAYouth on yahoo groups. Maybe also the Facebook/Myspace groups and other places where young HD people hang out. Where...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Becca & Katies Birthday Tuesday December 23, 2008 All Day ...
huntingtonsatrisk@yah...
Dec 22, 2008 5:59 am
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A good article on how to approach your family about HD. http://www.mayoclinic.com/health/family-medical-history/MY00472...
I hope everyone had a nice Christmas and Hanukah. For some reason, I'm having a difficult time using the words "Merry" and "Happy" this year. After living...
I am at Risk for huntingtons I found out that my Aunt tested posted for it and I am most certain my mother has it. her mother and grandmother both had it. My...
Yes, unfortunately you can be denied life insurance and other types of insurance if you test positive for HD prior to having the insurance before testing. ...
Yes, there is much discrimination in life and health insurance. I tested anonymously. They did just pass legislation making it illegal to discriminate in...
Hey..I am Heather... I have HD. You have to get insurance before you get tested. After the result you can't get it anymore. I run a postive HD site. It has...
Hey.. There is a way we can have kids that don't get HD. My husband and I are going to. HD Free With PGD! Trevor and I want to do this. Planning an HD-free...
Just get the hope. There are so many breakthoughs now. More trials. More cures. More hope. Think of hope when you see your brother. Mine has it too. He is more...
Yes, unfortunately paying out of pocket is THE way to go. However, if you test negative, you can go back and have your insurance billed for it. ... From:...
I had a very good friend tell me something right before I got my results that she had said before. It really helped. She said it's been the same blood flowing...
thanks for all of the feedback to answer some of your questions I will be 40 this year and I have 3 daughters ages 4,3,2. I am familar witht his diease and...
Hi there. I just wanted to let you know that you are not in the boat alone. My mother's family is riddled with HD and she died before getting tested. We wanted...
My ex and I had two kids who are now 12 and 15. While I was pregnant with the first, his mother started having neurological symptoms. She was eventually...
Hi Heather yes PGD has been around for a while now but you also have to keep in mind that it is very expensive and it might not take the first time it can take...
Hey Ronni how are you I see your brother is still going and his symptoms are getting to you. Yeah it takes a lot to make a caregiver and to sit back and watch...
Shannon, I know I am probably alone in this thought but there is never a right time to talk to kids about HD, I told both of mine on was 13 and the other was...
Hi Shannon,  Sorry to hear that your family has been in denial for so many years about the disease. My grandmother lived with me when I was growing up, so...
Hi Shannon, I agree with Susie about there not ever being a "right" time to tell a child. They present many opportunities though. Children ask questions. The...
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