There are three new articles up on the HDDW website written by Dr. LaVonne Veatch Goodman. The first talks about what CHDI is up to and provides some insight...
Dr. LaVonne Veatch-Goodman announced yesterday that a new article was available on the HDDW website http://hddrugworks.org/ [see her below email] covering the...
Many people have contacted Susie and I about a Phase IV HD Quilt. Perhaps it's time to think about putting together another one. If you are in agreement let...
We went to the power of attorney conference. We learned a lot. It was really good. It was 4 hours long. We need to come up with a will. We want things worked...
It has been a long time since I've posted. My sis Dawn who had HD passed away on Sept 15th. She has been in a nursing facility for just about a year. She took...
I looked into having my sister's brain donated to help in finding a cure for HD but got the info too late. If this is something that anyone would like as an...
Please take a moment to visit Rikki's Memorial web site today and light a candle. It is an incredibly beautiful tribute to Rikki by her wonderful family. ...
I thought this article may be of interest: Adapting To Life With The Risk Or Reality Of Genetic Disease: Genetic Counselors Suggest Ways To Help Patients Cope ...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Steves Birthday Thursday October 30, 2008 All Day (This event...
huntingtonsatrisk@yah...
Oct 29, 2008 5:04 am
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Yahoo New Profiles I wanted everyone to know that Yahoo has Now a new profile setup. If you have looked at any ones profile lately you will see that the old...
Hi Sue, I just tried to light a candle on the site, but it wouldn't even let me view the site. I could see it pop up but then was redirected to a Microsoft...
Hey Guys! :) I am not sure if you remember me (some will from chatting on Yahoo Messenger) I used to use the group quite frequently a few years back. My Mum...
Hi All - I've been here quite a while reading & learning. It looks like the final step of discovery will be taken soon & my (step)great niece will be tested...
Last week I created the "Supporting The Huntington's Disease Association" Cause on Facebook and today I have entered my story into the "Facebook for Good"...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Dominics Birthday Monday November 24, 2008 All Day (This...
huntingtonsatrisk@yah...
Nov 23, 2008 6:00 am
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LaVonne Goodman wrote the below article that explains what HD families must do in order to get a prescription for Xenazine filled. It's an excellent article,...
Besides the HDDW article you can also read the HDSA November 24, 2008 News Release on Xenazine Tablets Availabile in the U.S. here www.hdsa.org/xenazine where...
Below is an article from the Huntington's Disease Drug Works web site:- The Huntington's community has been without treatment for so long that we don't let...
My brother called me earlier. He was tested and it was positive. He doesn't know his count yet. He is going in for another appt. in one week. I don't think it...
Hey... I have HD myself. My younger brother Gary got it around the same time as me. It hurts at first. Takes a bit to sink in. Don't be too worried. Hope is on...
Hi Kelly, Facts are facts. Perhaps your brother felt he already knew the answer? I do not know you. I do know the feeling of being tested, I was tested this...
The HDSA has published the below article by Dr. LaVonne Goodman which provides full coverage of the recent Huntington Disease Clinical Research & Symposium...
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