For those that didn't know the National HD Team Hope web page recently got its final approval from HDSA and is now live and running at http://www.walk4hd.org....
Check out my Quechup profile! I created a Quechup profile with my photos, videos and blogs and want to add you as a friend so you can see them. First, you need...
I made a memorial page for my Mom. She died of HD when I was 17. I wanted to do one for a while now. There is one now. I will try and be as brave as my Mom was...
See links to both the AP & Reuters news coverage articles. The below are excerpts only and not the full article. Dr. George Daley and his colleagues at the...
I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join...
Mike Brown wrote about the new HD support group and he said it was okay if I shared a little more information on this group. If you're receiving individual...
Ooops I sent out the old one with a bad email for Mike. The below & attached is correct, sorry about that! Mike Brown wrote about the new HD support group and...
In october i am setting out to start filming a (very low budget ) documentary on hd and all the stages. I sold my car bought a crappy small old rv I will...
Where are you located. My Mom has HD and I am sure would be in the film. We are in southern Missouri. I didn't know if you were going all over the US or...
well i was going to stay as close as possible ...doesnt meen it will happen!! Im in ohio ...but ill go as far as i need to to make this happen...Im still...
H.R. 6259: Huntington's Disease Parity Act of 2008 On-line Petition http://www.petitiononline.com/HR6259/petition.html As of this morning, August 16, 2008,...
The Canadian HD Society is having their annual HD Amaryllis Campaign. Buy the flowers. My family does this every year. They want to raise a million dollars...
Hello. My name is Sarah, I'm 28, and I live in upstate New York. I lost my mother in March after her long battle with HD. I have two brothers, and we are all...
Sarah, welcome to the group. We're always sorry for the reason you sought us out but glad that you've found us! Feel free to post any questions you may have...
Sarah, welcome! I am sorry to hear about your mom. I lost my mom in December of 2007. It is still hard for me to grasp the fact that she is gone. I am also at...
 Hello... I am Heather. I am 25 and in home care. I lost my mother to HD too. I started up the only postive HD website. I understand how scary it is to have...
... I started up the only postive HD website. I understand how scary it is to have HD. Get over the fear of HD. There is so much good going on. There are so...
Jean, I was searching through old posts and found this one. I would love any information you may have regarding IVF and PGD. Could you please send me...
Gina, Â There is also one other way to make sure there's a healthy baby. You can get pregnant the old fashioned way, and they can test the baby at like 10-12...
I actually didn't expect responses so quickly, but I'm happy to see them. My older brother, 32, is symptomatic but hasn't been tested. His battle will be the...
... His ... extended ... brothers, ... people ... in ... she is ... Diego , CA ... yeah my mother was taken care of at home by me,,13 years,probably the ...
I actually know someone who went through the whole process and delivered to HD (-) twins in April 2008. If you want, I could try and get her email addy. ...
My mom had HD and I am sure she would love to be apart of this film. I am in ct. She is in MA. Please e-mail me. -- Simon: In all that time on the ship…...
Sarah, I am so very sorry to hear about the loss of your mother. I lost my mother to HD in 2000. She was 50....WAY to young to say good bye to a mother. ...
Hey... I try and find people who need help in here. The distress center still in me. I am always looking and checking my email. I like to welcome people here....
The HDSA is now on Facebook and Myspace! Facebook: http://www.facebook.com/pages/Huntingtons-Disease-Society-of-America/24739423015?ref=ts My Space:...
You are invited to the 2nd Annual NW HDSA Walk-A-Thon! (Please note that the NW chapter serves WA, OR, ID, MT, and AK) Â A year has gone by in the Pacific...
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