Below is the link to yesterday's Patient Power broadcast on JHD. I just listened to the interview which lasts 49:47 so pour a cup of coffee to listen! Check...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Moms birthday Saturday June 7, 2008 All Day (This event...
huntingtonsatrisk@yah...
Jun 5, 2008 5:06 am
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Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Moms birthday Saturday June 7, 2008 All Day (This event...
huntingtonsatrisk@yah...
Jun 6, 2008 4:58 pm
6636
Today I met up with the local HD co-ordinator about doing voluntary work for the association. I was telling her about this group and how there is some...
Barbara, Thank you for meeting up with me on Friday. I've had a think on a few of the options to help out the association, and wanted to let you know I can...
Hey...  My husband and I volunteered at the HD chapter in Calgary, Alberta Canada. We volunteered at the garage sale for two days. We raised 4000. Have...
My husband died on Saturday in a kayaking accident. He was at risk for HD. I tried to make a donation to research, but the autopsy was done too late. ...
im so very sorry for your loss. my thoughts are with you and your family. Ronni. ... From: Kristen Mikula To: huntingtonsatrisk@yahoogroups.com Sent:...
I am so sorry. May God be a comfort to you in your time of need. ... From: Kristen Mikula <k_ee2000@...> Subject: [huntington's at risk] My husband To:...
How does a spouse get power of attorney over their spouse who has HD? Are people forced to take their spouse to court in order to get power of attorney over...
What do you does a person do if they are married to an at risk person who doesn't want to plan ie; get a will, power of attorney, etc?? Is there anything the...
I am so sorry. I know what it is like to have a family member die in a tragic accident. My 18 year old cousin died in a horrible school bus accident. It...
I joined this site and found it somewhat strange that when I tried to click on the *confirm* link, i got a "cannot find the page" message. Illinois Chapter...
This is such sad news. I am so sorry Kristen. He was so young , its just sad. I know of no words that would comfort you at this time. Just know that I am...
I am so sorry. -- "I can't keep track of her when she not incoporeally possesing a spaceship, don't look at me...." Simon, Objects in Space, Firefly...
Congressman Bob Filner introduced the bill to congress to require the Commissioner of Social Security to revise the medical criteria for evaluating disability...
First off, have you all checked out HDSA's new website? Still the same old address, www.hdsa.org, but a new updated look. And soon, NYA will have its own home...
For anyone, like myself, who has been experiencing any difficulty finding things on the new HDSA website, I discovered the link to their Site Map this morning...
I finally made the memorial page for my cousin Jenny. She died in a school bus crash in April. I needed to get people to see how amazing she was. How much I...
There is an excellent article published in the June issue of the New York Magazine written by author Kevin Baker who has Huntington's Disease in his family....
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Monday July 7, 2008 All Day (This event...
huntingtonsatrisk@yah...
Jul 6, 2008 5:02 am
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Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Monday July 7, 2008 All Day (This event...
huntingtonsatrisk@yah...
Jul 7, 2008 4:25 am
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Phase II DIMOND Study [Dimebon] Results Are Very Encouraging HDSA Breaking News by Marsha Miller http://www.hdsa.org/research/news/815.html Not only is it safe...
Hey Everyone, My name is Gina Crawford. My father was diagnosed with HD four years ago, and I was tested today, July 8. I am now waiting for the results. It...
Welcome Gina.? My Hubby has tested positive and we have an at risk daughter.? So far his sister is positive, and my brother's wife just tested negative.? Yes,...
Hi Gina, My heart goes out to you about the decision to test. I just received my test results on May 23rd. It took 32 days for my results. I have a very...
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