thats very sad, how old was he? Ronni. ... From: Dave Hodgson To: huntingtonsatrisk@yahoogroups.com Sent: Tuesday, February 26, 2008 3:20 PM Subject: Re:...
The Genetic Alliance organization is one of the most active in advocating against genetic discrimination in the United States. I first sent out information on...
This was posted on Hunt-Dis Subject: Active case of genetic discrimination needed Good Morning America wants to showcase the problem of genetic discrimination....
In case anyone hasn't seen this...........there's one week left for your application for the 2008 NYA Convention Scholarship to be postmarked!! Remember, if...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Papaws Birthday Sunday March 9, 2008 All Day (This event...
huntingtonsatrisk@yah...
Mar 8, 2008 6:00 am
6532
The kids and young adults in the National Youth Alliance will be kicking off their annual search for donated items to support their Silent Auction at HDSA's...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Papaws Birthday Sunday March 9, 2008 All Day (This event...
huntingtonsatrisk@yah...
Mar 9, 2008 5:05 am
6534
I have won more awards in a short period time than any other site, 41. 8 of them are International Awards. They are the hard ones to win. I applied to them...
The HD Lighthouse had an article up on Avicena's HD-02 Phase III HD Trial before I sent out the release a few minutes ago! Phase III Creatine Trial: ...
Anyone living near the Indiana/Michigan state line please plan to attend this event and support theses two wonderful HDSA National Youth Alliance members as...
New people have added their names to the HD Map in the past few months and they hail from all over. Everyone is living with HD in one way or another and have...
Anyone remember all of those wallet-size cards and the HD awareness brochures I made and had in a book at the NYA table at the convention in Atlanta? Well I...
Hello everyone, I need your help. I am asking everyone to please email Ellen Degeneres on my behalf on March 28th. I would like to be on her show to discuss ...
For anyone living in this area of California, try to attend. You can learn a lot at the state held HD conferences & convention plus you get to meet others...
Does anyone know the odds of the CAG repeats falling in the "grey area of 30-39??? I am going to be tested soon and was just curious if anyone knew. Thanks !...
Hey..Im have 37 CAG repeats and have HD. Heather Dugdale ... From: cindy_diogo <cindy_diogo@...> To: huntingtonsatrisk@yahoogroups.com Sent: Tuesday,...
Marsha has a new HDL article online covering the exciting press release this past weekend on Novel targets for HD. It's a pretty detailed study and article. I...
My father has a CAG repeat of 37 and has been tested 2 times to confirm. He has also been diagnosed with ALS. He is being treated for the ALS as he does not...
Dear Friends of HDSA: I am a former member of the HDSA San Diego Chapter and participant in the upcoming Rock and Roll Marathon this June. And I have declared...
Great letter to Ellen Misty, and a FANTASTIC video! For anyone who might have had trouble getting to the video on the link Misty provided, try this one:...
For anyone planning on attending the HDSA convention in Pittsburgh, this is a good site to estimate the cost of round-trip airfare anywhere in the US. After...
For some reason, without the http:/ that site isn't working. This one does: http://www.farereport.com/ Fare Report is a free tool that provides travelers with...
WOW a book written by one of our own NYA members !!! I couldn't see if Lauren copied the list, so I am! I've also put some information about the book on the...
First, the HDSA and the NYA Adult Advisors are ELATED to announce that the National Youth Alliance [NYA] 2008 Convention Scholarship Fund will be sending...
Rick, Unless someone else has the information and can respond sooner, I have the flyer at home. I can send you the information this evening unless someone...
Thanks, Me too. I am going to call Marie this pm, but I am under a newspaper deadline. Thanks, Rick Harden _____ From: huntingtonsatrisk@yahoogroups.com ...
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