Dear Friends & Family I would like your help in signing a petition to get the Social Security Administration [SSA] to update their Disability Evaluation Under...
UCLA is doing a study and is looking volunteers with Huntington's Disease or at risk for HD for an important study. Volunteers will have one QEEG, a simple...
Hi, I am not out trolling for votes, I promise, but I found this awesome Disability Fact Sheet on Barack Obama's website. It's 9 pages long but definitely...
With the exception of the Cambridge Brain Repair Centre in the United Kingdom, all DIMOND study locations are in the USA. Please read more about this clinical...
Just a friendly reminder that the 2008 HDSA National Youth Alliance applications for Convention Scholarship MUST BE POSTMARKED no later than midnight, Friday,...
... IN ... GROUPS ... Hello Jeremy, My name is Kelly. I am at risk and am 28. I am sorry about your family. HD is very scary. Just try and take care of...
Hi-I'm 28 and at risk. I am and have been very open and honest with my souse from the very start of our relationship. My family is very open about the...
For anyone who has attended an HDSA National Convention you have witnessed, first hand, how important peer support is for all of our young people living with...
Hello Everyone... I will be running the San Diego Rock 'n' Roll Marathon on June 1,2008 to raise money for HD!!!! There is a team of 17 us running to cure...
Hi Ronni Adrienne and her team are probably representing the HDSA San Diego Chapter, but I'm sure she'll answer you. You can learn more about the San Diego...
Was more thinking of my brother with HD, he lives in New Zealand. If hes not deteriorated too much by next year he MIGHT be interested. Hes applied to do the...
If you live in New Hampshire you might want to read this! It's a wonderful article about a lady with HD finding the right home services to help her maintain...
I now on a blogs top 100 Chronic Disease Blog list. They were combing the web and found my HD site. They loved it and put it on there. This is what a positive...
MY WIFE AND I DECIDED THIS WEEK TO GO TO PITTSBERG FOR THE CONVENTION. WE HAVE NO IDEA WHERE IT IS AT EXAACTLY SO COULD SOMEBODY PLEASE GIVE ME THE ADDRESS AND...
MY WIFE AND I DECIDED THIS WEEK TO GO TO PITTSBERG FOR THE CONVENTION. WE HAVE NO IDEA WHERE IT IS AT EXAACTLY SO COULD SOMEBODY PLEASE GIVE ME THE ADDRESS AND...
As almost everyone knows by now, the HDSA 2008 National Convention is June 6-8th in Pittsburgh, PA. That's only a little over 16 weeks away. That may seem...
Anyone associated with the New England Chapter of the HDSA knows they've done an outstanding job of advocating for HD families in the New England states!...
just a A Heads Up If you belong to any Yahoo Groups this is important... Yahoo is now using something called "Web Beacons" to track Yahoo Group users. around...
How many times have you gone to www.google.com websearch and just put in the words you needed to search for something, never paying attention to what else the...
Don't miss Charles Sabine's, the NBC world news correspondent who was diagnosed with HD, presentation on video that he gave at the CHDI conference last month:...
For everyone who was overwhelmed and impressed by NBC world news correspondent Charles Sabine presentation [and video] given to the HD researchers in...
Even though I have been experiencing HD mental symptoms for two years now. They could not diagnose anyone who does not fail the neurological test. I passed it...
Once again, Heather, you bring me both tears and a smile. I can only pray my attitude will be as inspirational as yours should I ever cross the line from...
Thank you so much. They have a tendency to not tell people the age I am. It is so frustrating. Especially since the people who are young don't want to know....
Heather, I wish you and your husband the best. I am glad that you seem to have such optimism and Hope. I think that you will need it and it will serve you...
I have not posted anything in a while. I can't see all of these blogs without getting upset. Everyting makes me cry. You are all brave and strong and...
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