This my New Years address. We have lots of hope from this year. Lots of treatments. Lots of new possible cures. We should take stock in knowing this. Every...
This my New Years address. We have lots of hope from this year. Lots of treatments. Lots of new possible cures. We should take stock in knowing this. Every...
I wish I qualified, I could get a 3 month supply of Synthroid $20.00 vs what Medicare is costing! Income To use Rx Outreach, your income needs to be less than...
There are so many great video's on the Internet on HD that I tried finding as many as I could and linked them all to a new website: Huntington's Disease Video...
One of the HD Video Theater links I shared yesterday was this excellent resource video: The Gift of Caring http://www.youtube.com/watch?v=tUPs-Xr5nSw Time:...
Many people have told me that they didn't receive the most recent copy of the HDSA Marker magazine in the mail. Well HDSA now has the electronic version...
I found a bunch of new video's today that, although not HD specific, I'm hoping y'all find helpful. I don't know about some of you, but I'm a visual person....
For any young person at-risk 12 to 17 living in the St. Louis, Missouri area I'm happy to report that there is a teen group for you! St. Louis Chapter At-Risk...
If you have any young people living with HD, ages 9 to 29, please read the HDSA message below. First, any existing member of the NYA must fill out the new NYA...
GOOD EVENING.MY NAME IS JEREMY AND I HAVE HD.I HAVE 48 HITS (I THINK THATS WHAT ITS CALLED).I AM 31 AND HAVE BEEN DOING GOOD.I FEEL BAD BECAUSE EVERYBODY ELSE...
I added a new link. It is dedicated to get us stem cell research in the States. There is ways to email and get a hold of US Representatives. We need to do...
It is dedicated to get us stem cell research in the States. There is ways to email and get a hold of US Representatives. We need to do everything to make sure...
Welcome Jeremy, Welcome to the group. I'm sorry to hear of your diagnosis, your cousin being in the nursing home and you Moms passing. My younger brother is...
I am about to turn age 52 with have a count of "42." My dad is age 79 with a count of "41." Neither one of us have any symtoms and I am considering going for...
Hi Jeremy , I am new as well. My name is Terry, single parent of 3, grandparent of 4 and I have just been diagnosed with HD. I also adopted a special needs...
Hello and Welcome- I am not at-risk. My husband was diagnosed almost 3 years ago with H.D. He is now 33. His father died just last summer with H.D. he was 49....
Hey.. Jeremey I am 24 and am experincing HD. I have a brother who just got diagnoised. He has been expercing HD symptoms since he was 21. He was diagonised and...
This was posted on Hunt-Dis January 17th. The author, Ricki Lewis, is a geneticist who is also a science writer for CHDI. Inc. [http://www.chdi-inc.org/]....
Hi, I have been reading the list for a while, working up the nerve to post. My husband is at risk. His father, sister, and several aunts and uncles are gone...
... be able to talk about anything and everything. In a nonconfrontational way in a neutral setting, after reading the Sunday paper while you two are alone,...
I just ran across another forum where you can ask about HD, post your own story about living with HD, or try to help somone else looking for answers if you're...
Sorry according to the station's website the time is listed in Pacific Time http://www.patientpower.info/blog/Events/default.asp?Year=2008&Month=01&Day=23 So...
LOL I was just getting ready to send this out! 01/23/2008 Wednesday 12 noon to 1:00 pm Eastern time 10:00 a.m. - 11:00 a.m. Pacific Time About Dr. Paulsen:...
Hi Kristen, welcome, glad your here, sorry you need to be. I'm 45 and at-risk, and discussed this with my wife well before we were dating serious. My 47 y/o...
Hi hope everyone had a chance to listen to the PatientPower show on HD today with Dr. Jane Paulsen and Karen Milek, it was chock full of some great questions,...
I'd even recommend your friends or coworkers also listen to this to learn more about HD! Hopefully the 2nd interview on HD will be scheduled sometime soon! ...
If you listened to the PatientPower radio interview with Dr. Jane Paulsen January 23rd, you heard Dr. Paulsen talk about the excitement in the HD community...
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