As most of you know the FDA will have a hearing for Tetrabenazine [TBZ] on December 6, 2007. This hearing will be a Open Public Hearing which provides...
Sorry, I won't post anything else on this subject until after the meeting, I promise! The only reason I'm posting this one is because it gives the mailing...
Probably one of THE most important studies being done in Huntington's Disease [besides PREDICT HD] is the Huntington's Study Group's [HSG] COHORT Study. Why? ...
This was posted on-line yesterday. For anyone participating in the DOMINO study or taking Minocycline, it's important you read the below HDSA coverage. I'm...
The end of October I told y'all about "Curtains UP for A Cure - Broadway Honors the Faces of HD" that was in New York City November 5th. This event honored the...
What's a little more nuts to an HD family? Well it appears eating them can help! The Society for Neuroscience recently had its annual meeting and the HD...
If you belong to Hunt-Dis and you use the archive link to read messages [like me] or are on Digest and haven't received your digest from yesterday, there is a...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Dominics Birthday Saturday November 24, 2007 All Day (This...
Each link worked when I went to it, but some pages do not stay up so not sure how long these links might be good that are older. Some links might not work...
Hi Lily123a123 sorry this is so late in coming but I do want you to know you are not alone facing what ever comes with this disease. I have looked ahead in my...
Hi Scott nice to have you here, I am sorry to hear of your sister though. Wow I do not believe I have ever heard of anyone going back over the archives to see...
I am not At Risk for HD but I use to think what I would do differently if I had to face something of this magnitude and I have decided it is impossible to do....
Hi Catherine it is amazing how someone else's story resembles your own so much isn't it? I appreciate your thanks for the site as it was developed for people...
I know this is 4 months to late and I hope you found a way to relocate. What I would have done was contact a church and talked with them as they have ways to...
I made a webpage that covers the choice of not getting tested and getting tested. I have D. I put ways to have a positive life during the testing process and...
... < Fixed Now> ... I made a webpage that covers the choice of not getting tested and getting tested. I have HD. I put ways to have a positive life during the...
Gosh Scott you did it went through them all mercy man are your brain cells fried now? LOL Mine would be... well mine are after going through over 1,000 emails...
Each link worked when I went to it, but some pages do not stay up so not sure how long these links might be good that are older. Some links might not work...
Thank you, Jean, for the holiday blessings. Our family had a good day. Hope your Thanksgiving Day was as nice as our. Most sincerely, Vada ... good food and...
Kelly welcome to At Risk Group and your new HD Family, sorry to hear HD has touched so many of your family members. It is never easy dealing with any disease...
Hey Popie nice to see you posting, hope things are going as well as possible for you. Popie wrote, "IT IS WONDERFUL BUT HARD ALSO WHEN I REMEMBER WHAT A...
WOW, Sue. I truly feel that I have arrived now that I have received the warm welcome you so readily dished out in the previous 7 years!! I was feeling...
Mercy Catherine I know this has come way to late for your call of help and I am sorry I didn't catch it before now. I hope someone emailed you so that you...
I created a website that helps people make an e3asier descion on getting tested. I had HD. When I got tested people told me that I was the most positive person...
Mihaela I understand what you are talking about and going through as my husband did the same thing. This part of HD is very hard to deal and live with. You...
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