Someone posted about this group on the Yahoo HD Caregivers indicating they have gotten a bed, toys, clothes and even $100 tickets to a fair, all for free...
its great! i got a loft bed for my step daughter, which she just LOVES! (amongst other things). Ronni. ... From: Jean E. Miller To: Undisclosed-Recipient:; ...
Hey everyone, I wanted to let you know I have started a new website and I hope you will check it out. I hope you don't mind if I post it in here... The website...
I finally set my testing date and it's Friday, October 5th! I should get the results back in 2-3 weeks. I'm scared and nervous, but at the same time I'm calm...
Brief SSDI questionnaireThis message was forwarded to me. It was sent to the HDSA Chapters Presidents by Sean Luis, the new Advocacy & Family Service Manager...
I remembered to follow up! The second article about the Jackowski family from Illoinois is published on the Daily Herald news today! Another fantastic...
THANK YOU...THANK YOU...THANK YOU to all who gave me so much encouragement. I just recently joined this group and I already feel like I'm benefiting from...
I am not at risk, but my brother has HD. When I first found this group some yrs ago it was so overwhelming SO many ppl understanding what i am/have been thru....
Good luck!!! I know how nervous I was to get tested. It really was a terrible wait. Mine was weird because I tested in a different state and had to wait 5...
You know, I was just thinking about it and there's something my HD friend Cathy told me before I got tested and got my results. She said this doesn't change...
Thank you Michelle...it does help! Congrats on your results being negative!!!! I went to a pysic a few months ago and she told me that I don't have whatever...
Thanks to the hard work of the Northwest Chapter of HDSA President, Liz Weber and their board, a Tribute Concert to Celebrate the lives of Woody and Marjorie...
Herb, I'm very sorry for your loss. You and your family will be kept my prayers. ALL, As you may or may not remember my dad (not a pHD) died this past April....
... Hang in there. I will keep yo uin my thoughts and prayers. Herb, ... prayers. ... April. Following his death I lost 2 cousins I was within 2 days of each...
It sounds like you are having a bad time. They say that problems come in cycles. I lost 3 members of my family in 1 month. Things do get better eventually. You...
Dear Rhonda, I'm so sorry regarding what you and your family are going through. Please know that you all will be in my prayers. Most sincerely, Vada...
Hi, I'd really love to talk to you about this, but would prefer to do so privately. Since I see your email is set up as "no reply", would you please email me...
Im sorry to jump in here you have my attention on this question. First I need to say that I am sorry you are having such difficulties I cannot even imagine how...
Wanted to say thank you to everyone for your support, prayers, and shared stories. I don't remember who asked, but yes Caleb does know his doc. wants him...
My mom had HD. For a while they thought she had MS because she was early 30's when they were trying to determine what she had. Does anyone know if there is...
I will be hostessing a Juvenile H.D. awareness and funraising event in April in Central MA. We are in need of sponsors BIG time. I need to reserve the golf...
All the best for the fundraiser. Are you able to get radio stations behind you, and contact companies that sells products that focuses on your target market...
Thank you very much. Yes. I will be contacting Entercomm and Greater Media. Closer to the event date it will be on local television community calendars. My...
last night after i responded to ur email i went to the local HDSA website and emailed them, will let you know if anything comes of it. My DH is very...
I'll know within the next two hours my status....I'm extremely scared, nervous and anxious. But I also feel relief that I'll finally know my status and won't...
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