Anyone who attended the first HDSA National Youth Alliance Friday night Talent Show in St. Louis in 2004 will remember giving a standing ovation to a young...
Most of you probably already know that the HDSA has uploaded the presentations from the 2007 HDSA National Convention in Oklahoma on their website, available...
Way to go Eric!!! From: Melissa Worthington Sent: Friday, August 03, 2007 2:36 PM Subject: Eric Licht Climbs Mt. Rainier to Raise Money for HD Dear Friends - ...
Hello. My father is living with HD. He is not well. It is sad to remember the man that he used to be, and see the way he struggles now. I am sorry for ever...
Scott, I am so agreed with you about having children. I was 18 and pregnant with my first pregnancy and my mother made me feel so horrible for having a child...
SORRY ABOUT YOUR ORDEAL BUT I SAW THAT YOU LIVE HERE IN SC. MY WIFE AND I SHE HAS HD WE LIVE IN CAYCE THAT IS OVER IN WEST COLUMBIA. IT IS A HORRIBLE NIGHTMARE...
I'm so sorry to hear about your Father and that you're at-risk. I'm also living at-risk, my Mom has HD, so I understand some of the things that you might be...
Marion, Thank you for responding to me. Sometimes here I feel so alone. My father's wife, Kathy is so wonderful to my father. I truly believe that she is...
Melanie, Thank you for responding. I am sorry about your mother too. Being at risk is very hard. Kind of like tight rope walking I think. I can't stop...
im so sorry you are having a hard time coming to terms with/dealing with the whole HD thing. Its a very hard one, and if friends have never experienced a...
Ronni, I am sorry to hear about your father, and I know it must be hard on you that your brother has it now too. How old is your brother, if you don't mind my...
Hey Kelly, A bit of family history for ya...my Mum and Dad separated when I was about 3 yrs old (my little brother was about 1yr old) there was alot of HD...
Kelly, Crying is good and can be very therapeutic. Being at risk is very hard and I'm so proud of you that you haven't let this stop living and have a...
Some of you may have already voted but they found out that a couple people must have rigged it to keep voting around the clock, so they changed the voting to...
They restarted the votes so please VOTE TODAY! VOTE HERE: http://www.q1043.com/pages/ltd.html For HDSA NYA Member Stephanie Curnow! Right now she is in 2nd...
i voted. shes doing great. i also watched the clip, shes very talented. R. ... From: Jean E. Miller To: Undisclosed-Recipient:; Sent: Tuesday, August 07, 2007...
the links didnt work for me :o( Ronni. ... From: Sue Adams To: At Risk Group Sent: Monday, August 06, 2007 1:26 PM Subject: [huntington's at risk] Vote for...
Buna , Numele meu este Mihaela , sunt din Romania .Sotul meu este bolnav de HD de mai bine de 5 ani . De un an de zile din cauza agravarii bolii , s'a penionat...
Sure, now that my pneumonia and bronchitis is 95% healed! Be better if they include drugs people use EVERY day...but we'll all take what we can get for free...
Hello my name is catherine and i am a Hd gene carrier with a 41 cag repeat...ilive here in louisville ky i have been going thruu what i believe to be a very...
I would love to respond to you but I don't know Romanian. Could you post in English? We don't mind if it's not perfect. ;) Michelle -- "mikitheone74"...
Please see update from Leo below for links to his presentations! Thanks Leo, Susie & and I weren't aware of the brainstorming session in OKC - these notes...
Thanks to everyone for voting for NYA member Stephanie Cournow in the NYC Rock 'N Roll contest!! The following was posted on the HD Caregivers this morning: ...
i hope that you'r not sick ! my husband it's ill from HD and we have a dougther of 12 yers old ! i hope for her that she'l not get sick too ! so : GGOOOODD...
Please share this with any families who have family members at risk over 18 year old. As the information indicates "please feel free to pass on the online...
Rustey.... your email came to me as an owner rather than being posted to the message board so I've forwarded it for you. God bless, Sue ... From: "rusteym"...
Year after year, as your HDSA National Youth Alliance adults advisors, Susie and I have heard NYA members when you've said how much you wanted a support group...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
