The HDSA San Diego Chapter always offers excellent articles on their website http://hdsasandiego.org/ The one below on the existing Care deficits in HD...
There are so many exciting things happening in HD research in the world today! Thank heaven for the HD Lighthouse Editors for keeping up with them all and...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Saturday July 7, 2007 All Day (This event...
huntingtonsatrisk@yah...
Jul 6, 2007 5:00 am
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At risk almost 25 years. Why does this almost seem like an AA meeting? Happy to find this group. I've begun to read all the messages (7 years worth!), and...
just a question.........what would you change if you tested positive or negative? i'm 49 and at risk, for the most part a lurker. i read sometimes. debbie ... ...
What would I change if I test positive? At that point, I suppose nothing. I have insurance in place, and intend to obtain more prior to the process. I have 3...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Saturday July 7, 2007 All Day (This event...
huntingtonsatrisk@yah...
Jul 7, 2007 4:25 am
6179
Catherine (catjohnst) replied as below. Her email came to me personally rather than into the group so I'm posting it for her: Hi Marline, My name is Catherine....
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Chat Tonight @ 7PM CST Wednesday July 11, 2007 7:00 pm - 8:00...
huntingtonsatrisk@yah...
Jul 11, 2007 5:57 pm
6181
http://pulp1.design215.com/pulpchat/php/launch.php?chat=hdac Click on link or copy and paste in order to chat. IT IS FREE you just need and ID. I will be there...
The below email is from Jason Mundy who leads our Jacksonville, FL HD Support group. The Memories of Love website doesn't indicate that wishes are solely for...
It's another GREAT article and Stacy & her husband are to be commended for their willingness to share their heartfelt story with the media. As can be...
Another good resource! Long Term Care Planning Kit http://www.longtermcare.gov/LTC/Main_Site/Planning_LTC/Campaign/Kit/Kit.aspx This planning kit is available...
This looks like an excellent document! The Glossary helps explain all of the terminology you'll find in LTC policies, Shopping Tips which are things to look...
This is where I found those two documents National Clearing House for Long Term Care http://www.longtermcare.gov/LTC/Main_Site/index.aspx This web site was...
For anyone living in the Grand Forks, North Dakota area below is a message from Terry Fore of the Minnesota HDSA CoE about a new HD support group for you! ...
For those living in this area of our beautiful country here's a new HD support group for you! Subject: HD support group--Western Washington, north of Seattle ...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Chat Tonight @ 7PM CST Wednesday July 18, 2007 7:00 pm - 8:00...
huntingtonsatrisk@yah...
Jul 18, 2007 5:59 pm
6190
HD Map Where we live: http://huntingtondisease.tripod.com/id18.html Click on "place your pin" and when the map pops up, go to "list" at the top of the page to...
Hi, my name is Cindy and my sister has huntingons she is 45.My mother and brother both have passed away from it.I live in Ohio and she lives in N.C. and I am...
Gosh, keep 'em coming! I'd love to see an HD Support Group in EVERY town across America! East Bay, CA HD Support Group When: 1st Thursday of each month Time:...
Cindy, I'm in Ohio. Call me 513-309-8335. Rhonda ccomtrex <ccomtrex@...> wrote: Hi, my name is Cindy and my sister has huntingons she is 45.My mother and...
Stay tuned to more information on this study being posted on the HDSA and HD Lighthouse. If taken the information from the HSG and copied it into the attached...
My wife calls HD the elephant in the room that my family doesn't want to talk about. She's right, but the elephant is getting tougher to ignore. It's good to...
Hi Scott. Welcome to the group! I enjoyed reading your post! You read all the posts for the past 7 years? Wow, you're now as well informed as anyone! Some...
This was on CNN's Baynews9 tonight and might be of interested to anyone who follows political actions! Great political links Friday, July 27, 2007 One of the...
Hi Scott..I also welcome you to the group...my daughter in law and her siblings have HD..one passed at the age of 37 two years ago and the oldest sister...
Omg Toni, im sorry to hear of your situation. when you think you have it hard then hear stories like that it really brings you back to reality. Ronni. ... ...
Thanks for the waves... ...Toni, my heart broke with yours while reading about your experiences with dil and son... ...Enjoy the babies, they are lucky to have...
Bouncing Member Clean Up If you've noticed a change in the total number of members in your group, don't fret; we're cleaning up long time bouncing members. In...
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