Some might like to read this uplifting article on Dr. Wheelock's 10 Year Anniversary as director of the UCDMC HDSA Center of Excellence for Huntington's...
This message is for any young person, both current and future members of the HDSA National Youth Alliance [NYA], who will be attending the national convention...
I just found something new coming out on Woody Guthrie maybe no one, like myself, had heard about? It's about a book coming out this year called "Woody...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Moms birthday Thursday June 7, 2007 All Day (This event...
huntingtonsatrisk@yah...
Jun 5, 2007 5:00 am
6150
hmmmmm...but WHO'S MOM! lol Ronni. ... From: huntingtonsatrisk@yahoogroups.com To: huntingtonsatrisk@yahoogroups.com Sent: Tuesday, June 05, 2007 3:00 PM ...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Moms birthday Thursday June 7, 2007 All Day (This event...
huntingtonsatrisk@yah...
Jun 6, 2007 5:00 pm
6153
for those going to Oklahoma here's HDSA's prosed convention agenda, hot off the press [their website] for downloading or sharing! Potential Convention Agenda:...
The following is posted on HDSA's website. I've sent the link to the Danny Devito video before but for those that haven't seen it: See Ted Bogosian's new film,...
For those who don't receive Marie Nemec's daily messages from the road on the 2007 Rockies to the Plains bike ride for HD research, remember you can read them...
http://pulp1.design215.com/pulpchat/php/launch.php?chat=hdac Copy and paste the address, sign in it is free and go to the At Risk Room it is that easy! I am in...
hello, i am a new member. i have just been tested a few days ago. i figured along with the rest of my family that i did not have the disease. but i took the...
10 yrs ago today was when my Dad passed away (non biological, not that that matters...i never knew that til a few yrs ago). In a way its like it was just...
For those that were able to make the HDSA National Convention in Oklahoma you got to meet Stacy, her husband Mitch and their beautiful twin baby girls and saw,...
Steve Ireland and Marsha Miller, HD Lighthouse, have posted their notes from the Research forum at the HDSA National Convention in Oklahoma for those who were...
Am sharing a message Dr. Goodman posted on Hunt-Dis. Please check out the HDDW website! PS - My websites no longer contain scientific information, I leave...
The editorial comments on the Part II of the Research Update Forum from the 2007 HDSA National Convention in Oklahoma City are now on HDL! Everyone should give...
This information was posted on Hunt-Dis. The below link is to a article about little Brandi, 7 years old. She met her step-sister, Angelica, who also has JHD...
I wish I could go! If you're in New England or will be visiting the end of July, please make your reservations now! What: Summer Saturday for Families at...
The HDSA San Diego Chapter always offers excellent articles on their website http://hdsasandiego.org/ The one below on the existing Care deficits in HD...
There are so many exciting things happening in HD research in the world today! Thank heaven for the HD Lighthouse Editors for keeping up with them all and...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Saturday July 7, 2007 All Day (This event...
huntingtonsatrisk@yah...
Jul 6, 2007 5:00 am
6175
At risk almost 25 years. Why does this almost seem like an AA meeting? Happy to find this group. I've begun to read all the messages (7 years worth!), and...
just a question.........what would you change if you tested positive or negative? i'm 49 and at risk, for the most part a lurker. i read sometimes. debbie ... ...
What would I change if I test positive? At that point, I suppose nothing. I have insurance in place, and intend to obtain more prior to the process. I have 3...
Reminder from: huntingtonsatrisk Yahoo! Group http://groups.yahoo.com/group/huntingtonsatrisk/cal Irenes Birthday Saturday July 7, 2007 All Day (This event...
huntingtonsatrisk@yah...
Jul 7, 2007 4:25 am
6179
Catherine (catjohnst) replied as below. Her email came to me personally rather than into the group so I'm posting it for her: Hi Marline, My name is Catherine....
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