Today when I received the news updates for the day about Huntington's Disease I was shocked to see the headline of "Huntington's disease may now be cured" and...
Sorry hit the send button instead of the paste button... here is the link http://www.dailyindia.com/show/130037.php/Huntingtons-disease-may-now-be-cur ed Susie...
Below is the official notice extending the NYA Convention scholarship application deadline. Applications most be post marked by April 18th. This scholarship...
Vicky, keep me posted on what happens. Karen :) Vicky Ayshford <vicky_ayshford@...> wrote: Thank you so much for your email back and the thoughts you...
For anyone living in Ohio, Michigan, Southern Ontario, etc. am sharing Jim Pollard's eInvitation for this one day Caregiver's Conference June 2nd. For those...
Since I no longer update my state-by-state HD resource pages, you can find a link to an individual HDSA Chapter/Affiliate or Center of Excellence (CoE) or HD...
A copy of the below is attached in Word format for sharing with your HD family members and support groups! Any support you can provide the 2007 NYA silent...
I and my HDSA CT chapter director have put together a "Healing Hands" HD walk for May 12 from 11 AM to 2 PM at Bluff Point, in Groton, CT. If anyone is...
just wanted to stop in and say hello. I'm new here. I am at risk and I've never been tested. My father died in 1992 with HD, my oldest sister died with HD, my...
For anyone living in Europe who might not know this, on the Euro HD Project website there is a section for Patients and relatives to contact the project and...
(External email systems may alter the format and punctuation of some emails. If you received a distorted or unformatted version of this HDSA bulletin, please...
Hi Emma nice to have you here just wish it was under better circumstances, sorry to hear about your Dad, sister and your brother. The ability to deal has quite...
emma, as a mother of 2 kids with hd, my son is 26 yrs old and in the early stages of hd, my daughter is 30 but symptom free, i can tell you that it is a...
Hi emma...welcome...sorry to hear of your losses through hd...my mum has hd and is in the later stages...it is a very cruel disease and can have a terrible...
Hi Nancy, Thanks for taking the time to respond to my e-mail. You're children are so young to be in the midst of this awful disease. My oldest sister was...
Hi Michele, Thanks for contacting me. Many years ago I belonged to a local support group but it wasn't the right thing for me at the time. All we did was...
Hi Sue, Thank you for e-mailing me. I have been lonely too long honestly. There is so much wrong in my life, past and present that it's taken me getting to...
Ok let me get to the point. I have been working in orlando and tiger woods has frequently came into both my jobs for the past two years. I know many people...
Info on this site was posted on the HDAC forum. I tried it and it appears to work! So for anyone who searches the Internet once or more a day, please start...
hi emma Im 28 and am in the process of getting tested...i have three brothers, 2 who have had the gene test and both came back positive. It sounds to me like...
By DAVID ESPO, AP Special Correspondent 30 minutes ago WASHINGTON - A stubborn Senate voted Wednesday to ease restrictions on federally funded embryonic stem...
Hi Lauren, I think it's great that you want to get Tiger Woods on board with HD. If you know him personally, ask what kind of charities he supports and if HD...
I had asked Phil some questions on the Arizona retreat because messages between Octobter-March contained some differences in the costs, number of people that...
Below is a clarification to the cost for the Arizona retreat received from Phil which will, hopefully, be incentive for anyone still deciding on whether or not...
Below is an update from Marie on the 2007 Rockies to Plains bike ride, including the website where you'll be able to follow the bikers daily, once they start...
I have started a blog. I'm inviting everyone but I realized after hooking up with this group that I also need to talk to people who know what I'm dealing...
I apologize to those who couldn't find my 360 site. In sending the e-mail, a space or two got added, but I'm not sure how it happened. Others have found me,...
On 4-2-07 the HDSA and the NYA Adult Advisors notified everyone that the deadline for submitting an application for the 2007 HDSA National Youth Alliance...
National Clearing House for Long Term Care Information U.S. Department of Health & Human Services [HHS] http://www.longtermcare.gov/LTC/Main_Site/index.aspx ...
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