Dear Friends and Family, Most of you know that Huntington's Disease, a neuro-degenerative, genetic disease of the brain haunts both Dave's family and my...
Remember the gala celebration will be at the HDSA National Convention scheduled in Oklahoma City June 15-17th 2007! Never too early to start making your plans...
http://pulp1.design215.com/pulpchat/php/launch.php?chat=hdac I WILL be at chat tonight if anyone wants to know. I know it has been a long time but I got a day...
I am new to this particular sight...I am 28 and from Australia. My mum has hd. She has had hd since i was 15, that I know of, and she has spent the last 6...
External email systems may alter the format and punctuation of some emails. If you received a distorted or unformatted version of this HDSA bulletin, please...
This is what I recieved from HDSA this morning in its entireity if anyone is intrested in doing this please just follow the directions HDSA sent. Susie ...
I'm sharing this request on behalf of Helen Brewer, Care Adviser - Juvenile Huntington's Disease for Euro-HD. Any parent of children with JHD, young people...
I know I have not been as active as I should of been but I have kept most of the news alerts I get so if I ever get caught up in life I can at least bring to...
MegaVoteEUREKA.......the times are changing [finally]! 24 states were in favor of this bill. Florida, among others voted against it. Go here to see how they...
IS THERE ANYONE OUT THAT HAS A FAMLIY MEMBER HAVING TROUBLE WITH MUSCUS AND STOP BREATHING, RATTLING IN THE THROUT, BUT THEY SAY HIS LUNGS ARE CLEAR.iF ANYONE...
This news alert is for your information only, before changing or doing anything please consult your doctor. I do not endorse any of this information it is for...
Hi iamsquaw302 sounds like you have several concerns about your family member. I have to admit I have not heard of anyone having trouble with mucus or the...
Probably just easier if I list several of the Society for Neurosciences [SfN] www.sfn.com excellent resources for HD families to download and share, use for...
MY WIFE TAKES MUCINEX IT SEEMS TO THIN THE SALIVA TO KEEP HER FROM COKING . HER DOCTOR PRESCRIBED A PRESCRIPTION TYPE. THEN MUCINEX CAME OUT. ASK YOUR DOCTOR...
(External email systems may alter the format and punctuation of some emails. If you received a distorted or unformatted version of this HDSA bulletin, please...
Hi my name is Marline and I've been apart of this group for about 4 years now. I've been pretty inactive with this group but do read up on all the emails...
Marline, I am 24 tested positive for hd gene 5 years ago it was hard for a while but im a better peron because of it. I too am afraid sometimes to have...
Hello Marline it is nice to hear from you just sorry you have to worry about having HD. I am not any where near your situation so I would say it would be hard...
Yeah my fiance has known about HD for 5 yrs now but still needs to learn more about it. As much as I have informed him of it I think he needs to take his own...
I know many of you remember Chris Furbee who is doing the video about his Mom having HD [see below]? His most latest interview will finally be aired tomorrow,...
Hello everone my name is Stacie and I am 26 years old and living at risk of HD. I have a beautiful daughter who just turned one last friday. My father was...
External email systems may alter the format and punctuation of some emails. If you received a distorted or unformatted version of this HDSA bulletin, please...
Hey Stacie I saw that you were a new member and i wanted to say hi. My name is Lauren im 19 , living in Florida. My story is very similiar to yours except its...
It is with a sad and heavy heart that we, the HDSF Committee, write to inform everyone that this will be the first year since the HDSF was started in 2000 (our...
Hi Stacie..My name is Michelle and Im 28 years old...my mum has had hd since i was about 14..she in now in the later stages of the disease and lives in a...
Hi Everyone, How do you convince someone to go to a doctor in order to get medications to help with HD??? My Mother absolutely will not go to a doctor to get...
Melanie, to be honest this is a hard thing to do been there, done that, got the tee shirt, sweat shirt and sweat pants to match! By the way the hat was free! ...
Sue,. Thanks for a good cry!I can so relate to this situation and your right your not a scarey person just loving enouph to lie FOR HIS BEST INTREST and YOU...
Just in case y'all don't sign on through the Yahoo message board they've had a warning for the past 2 days on all of them that, due to heavy activity, they are...
TOMORROW! Which means it is NOT too early to make your reservations now! This should be an exciting convention, combined with the 40th anniversary! The HDSA...
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